RecruitingNot ApplicableNCT05528900

A Multicentre French Prospective Study of Children With Food Protein Induced Enterocolitis Syndrome in Its Acute Form

Pathways of Children With Food Protein Induced Enterocolitis Syndrome in Its Acute Form : a Multicentre Prospective Study - National FPIES Observatory


Sponsor

Fondation Lenval

Enrollment

600 participants

Start Date

Mar 31, 2023

Study Type

INTERVENTIONAL

Conditions

Summary

Food protein induced enterocolitis syndrome (FPIES), is a non-IgE mediated food allergy (FA) which seems to expand, and occurring in infancy. This disease is usually unknown by clinicians. In 2017, an international workgroup of American Academy of Allergy, Asthma and Immunology published clinical criteria to specify the diagnosis. However, there is a lack of information in literature for describe the evolution and atypical phenotypes. In addition, no prospective French series has been published to date. The aim of the study is to collect clinical features and allergy testing of children who have acute form of FPIES at diagnosis and during evolution during three years


Eligibility

Max Age: 17 Years

Inclusion Criteria4

  • age from 0 to 17 years old,
  • seen in allergologist visit for acute FPIES, due to history of suggestive clinical symptoms, confirmed by the criteria published in 2017 in the JACI (Nowak-Wegrzyn et al, JACI 2017), or by an oral food challenge for diagnosis in the absence of the requested clinical criteria,
  • affiliated to social security (public healthcare system)
  • signed consent of one of the parents or the holder of parental authority

Exclusion Criteria1

  • Associated pathology that may contraindicate OFC at the discretion of the investigating physician. In particular justifying permanent treatment with a beta-blocker or an angiotensin-converting enzyme inhibitor.

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Interventions

DIAGNOSTIC_TESTallergy test

allergy test are oral food challenge , prick test and IgE blood rate


Locations(19)

Chu Angers

Angers, France

Chi Robert Ballanger

Aulnay-sous-Bois, France

Chu Clermont-Ferrand

Clermont-Ferrand, France

Hopital Civils de Colmar

Colmar, France

Chu Grenoble

Grenoble, France

Ch Haguenau

Haguenau, France

Chr Lille Hopital Jeanne de Flandre

Lille, France

Hopital Saint Vincent de Paul Ghicl

Lille, France

Hopital Civil de Lyon

Lyon, France

Chu Montpellier

Montpellier, France

Chu Nancy

Nancy, France

Cabinet Berlioz

Nice, France

Hôpitaux Pédiatriques de Nice CHU-Lenval

Nice, France

Aphp Armand Trousseau

Paris, France

Hopital Ambroise Pare Aphp

Paris, France

Hopital Necker Enfants Malades Aphp

Paris, France

Hopital Robert Debre Aphp

Paris, France

Chu Rouen

Rouen, France

Cabinet Chabbert

Toulouse, France

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NCT05528900