RecruitingNot ApplicableNCT06260943

Targeted Navigation in Hepatocellular Carcinoma (HCC)

Targeted Navigation to Achieve Health Equity: Increasing Access to Care, Patient Engagement and Research Participation

Sponsor

University of Miami

Enrollment

100 participants

Start Date

Apr 15, 2024

Study Type

INTERVENTIONAL

Conditions

Cholangiocarcinoma Hepatocellular Carcinoma Hepatobiliary Cancer

Summary

The investigators are trying to learn more about the personal perceptions and experiences regarding the needs of patients with liver cancer to help improve the care of all patients. The investigators would like to know whether there are needs that patients have or are aware of, especially those needs that the investigators have not been able to address. The investigators aim to develop a program that helps participants and participant's families to navigate the process of being diagnosed with liver cancer and receiving treatment.

Eligibility

Min Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This study is exploring ways to improve navigation, support, and access to care for people with hepatocellular carcinoma (HCC) — the most common type of liver cancer. Researchers are interviewing patients, caregivers, doctors, and other healthcare workers to understand barriers and find ways to make care more equitable. **You may be eligible if...** - You are 18 or older - You have a confirmed diagnosis of liver cancer (HCC) and are enrolled or eligible for a related liver disease registry - OR you are a caregiver or support person for someone with HCC - OR you are a healthcare provider involved in caring for HCC patients - You can speak English or Spanish **You may NOT be eligible if...** - You cannot speak English or Spanish - You have moderate or severe cognitive impairment (including advanced hepatic encephalopathy) - You are a prisoner - You are unwilling or unable to provide consent Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

BEHAVIORALTarget Navigation Pilot Program

Participants will meet with a navigator, in either English, Spanish or Creole, biweekly, in person or virtually, until the first treatment appointment and every three months after. Each session will last approximately one hour; depending on the needs identified, patients will be connected to appropriate institutional or community-based resources.