RecruitingACTRN12607000268448

Evaluation of an Online Fatigue Self-management Group Intervention for Adults with Chronic Neurological Conditions

Effectiveness of an online fatigue self-management program on well-being, fatigue and activity participation in adults with fatigue secondary to chronic neurological conditions in comparison with an online support group and a no intervention group


Sponsor

Curtin University

Enrollment

135 participants

Start Date

May 18, 2007

Study Type

Interventional

Conditions

Summary

Self-management interventions assist people with chronic conditions to manage their symptoms and retain a higher level of quality of life and activity participation. New ways to deliver self-management interventions are needed to overcome existing barriers, particularly for those who have difficulty accessing services due to geographical location, ethnicity, physical problems, limited literacy level, or who lack the confidence to be partners in their own care. Also, despite the fact that a growing population are living with neurological conditions in community, there are few studies focusing on self-management for neurological conditions. Online interventions have been shown to be successful in transferring information to individuals with chronic conditions; therefore online self-management interventions may be a reasonable way to bridge the gap between needs of individuals with chronic conditions and traditional health services. However, the role of the Internet in self-management of chronic conditions has received little attention in the literature. Based on Australian information, there is strong evidence that individuals have the ability to access the Internet. This study, then, will employ a Randomized Clinical Trial to evaluate the effectiveness of an online fatigue self-management group intervention and compare it with an online support group and a control group in a sample of adults with chronic neurological conditions.


Eligibility

Sex: Both males and femalesMin Age: 20 Yearss

Plain Language Summary

Simplified for easier understanding

This study is testing whether an online group program for managing fatigue can help adults living with chronic neurological conditions. People with conditions like multiple sclerosis, Parkinson's disease, cerebral palsy, chronic fatigue syndrome, or post-polio syndrome often experience extreme tiredness that makes daily life very difficult. The online program teaches self-management strategies — ways to better understand and cope with fatigue. The study compares the online program to an online support group and a no-treatment control group. You may be eligible if: - You are 20 years of age or older - You have a confirmed diagnosis of multiple sclerosis, cerebral palsy, Parkinson's disease, chronic fatigue syndrome, or post-polio syndrome (verified by a doctor's letter) - You have moderate-to-high fatigue (score of 4 or higher on the Fatigue Severity Scale) - You can access the internet at least three times per week for at least one hour at a time You may NOT be eligible if: - You have previously taken part in a face-to-face 'Fatigue Management' self-management group - You have significant memory or cognitive difficulties (score greater than 9 on a memory test) Talk to your doctor about whether this trial might be right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

Information Only Group: To exclude the possibility that "attention" accounts for improvement, this group of participants will receive information once per week via the Internet. They will be able to r

Information Only Group: To exclude the possibility that "attention" accounts for improvement, this group of participants will receive information once per week via the Internet. They will be able to read the information about how to manage fatigue. The education information will be posted once per week. The length of this group will be 7 weeks. Fatigue Management online intervention group: This 7-week intervention will follow the published protocol outlined in Managing fatigue (Packer et al., 1995). Each session is highly structured and includes an education session, practice activities, discussions and homework assignment. All teaching content, worksheets, and homework assignments are provided online. Based on self-efficacy theory (Bandura, 1997) each session incorporates strategies known to increase confidence in the ability to engage in specific behaviours. Also participants can share information, express their ideas or feelings and offer advice or support to one another. The intervention will be run by facilitators who have been trained.


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ACTRN12607000268448