RecruitingACTRN12608000621314

Improving the psychological wellbeing of family caregivers of home based palliative care patients: A randomised controlled trial

Evaluating the effect of carer education and support from a palliative care nurse on the psychological wellbeing of family caregivers of home based palliative care patients: A randomised controlled trial


Sponsor

Centre for Palliative Care Education and Research, St Vincent's Hospital

Enrollment

300 participants

Start Date

Apr 1, 2008

Study Type

Interventional

Conditions

Summary

This study will examine the effectiveness of a psycho-educational intervention aimed at promoting coping and psychological wellbeing in family caregivers caring for a relative receiving home based palliative care. The intervention will be offered in a full version (two home visits and one phone call) and the 'rural' format (one home visit and two phone calls). The main hypotheses are: 1. Primary family caregivers who receive the intervention will report: increased perceived competence for their caregiving role; increased perceived preparedness for their caregiving role; increased positive emotions associated with their role; decreased unmet informational needs; decreased levels of psychological distress, when compared with caregivers in the control group one week after the intervention. 2. Family caregivers receiving the intervention will report decreased levels of psychological distress when compared to controls 3 months following bereavement.


Eligibility

Sex: Both males and femalesMin Age: 18 Yearss

Inclusion Criteria1

  • Primary carers of patients who are admitted to home based community palliative care services. Patients must have cancer and a primary caregiver/next of kin (NOK). Carers must be over 18 years and be able to read and write English.

Exclusion Criteria1

  • Patients who do not have cancer and/or do not have a primary caregiver/NOK. Carers who are unable to read and write English

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Interventions

Three sessions with a palliative care nurse to provide carers with education and support relating to the role of caring for someone receiving home based palliative care. Sessions are approximately one

Three sessions with a palliative care nurse to provide carers with education and support relating to the role of caring for someone receiving home based palliative care. Sessions are approximately one hour in length and are conducted weekly. During the sessions, carers are provided with a resource pack which includes a family carer guidebook, a relaxation CD, and relevant service brochures. In addition, the nurse also assesses carer needs and develops a care plan to address carer needs.


Locations(1)

Australia

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ACTRN12608000621314