RecruitingACTRN12608000621314

Improving the psychological wellbeing of family caregivers of home based palliative care patients: A randomised controlled trial

Evaluating the effect of carer education and support from a palliative care nurse on the psychological wellbeing of family caregivers of home based palliative care patients: A randomised controlled trial


Sponsor

Centre for Palliative Care Education and Research, St Vincent's Hospital

Enrollment

300 participants

Start Date

Apr 1, 2008

Study Type

Interventional

Conditions

Summary

This study will examine the effectiveness of a psycho-educational intervention aimed at promoting coping and psychological wellbeing in family caregivers caring for a relative receiving home based palliative care. The intervention will be offered in a full version (two home visits and one phone call) and the 'rural' format (one home visit and two phone calls). The main hypotheses are: 1. Primary family caregivers who receive the intervention will report: increased perceived competence for their caregiving role; increased perceived preparedness for their caregiving role; increased positive emotions associated with their role; decreased unmet informational needs; decreased levels of psychological distress, when compared with caregivers in the control group one week after the intervention. 2. Family caregivers receiving the intervention will report decreased levels of psychological distress when compared to controls 3 months following bereavement.


Eligibility

Sex: Both males and femalesMin Age: 18 Yearss

Plain Language Summary

Simplified for easier understanding

This study is for family members or friends who are caring for someone with cancer receiving palliative (end-of-life) care at home. Caring for a loved one with serious illness is emotionally and physically demanding. This study tests a support program designed to help carers feel more prepared and confident in their role, reduce emotional distress, and increase positive feelings about caring. The program involves a combination of home visits and telephone calls from a trained counsellor. You may be eligible if: - You are the primary (main) carer for a family member with cancer who is receiving home-based palliative care - You are 18 years of age or older - You can read and write English You may NOT be eligible if: - The person you are caring for does not have cancer - You are unable to read or write English Talk to your doctor about whether this trial might be right for you.

This is a simplified summary. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

Three sessions with a palliative care nurse to provide carers with education and support relating to the role of caring for someone receiving home based palliative care. Sessions are approximately one

Three sessions with a palliative care nurse to provide carers with education and support relating to the role of caring for someone receiving home based palliative care. Sessions are approximately one hour in length and are conducted weekly. During the sessions, carers are provided with a resource pack which includes a family carer guidebook, a relaxation CD, and relevant service brochures. In addition, the nurse also assesses carer needs and develops a care plan to address carer needs.


Locations(1)

Australia

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ACTRN12608000621314