RecruitingACTRN12610000782033

End-of-Life Care in End Stage Renal Disease: Integration of an advance care planning process

Sponsor

University Hospital Foundation

Enrollment

200 participants

Start Date

Jan 1, 2007

Study Type

Interventional

Conditions

pre-dialysis (clinically expected to start dialysis within 12 months) and incident dialysis patients

Eligibility

Sex: Both males and femalesMin Age: 18 YearssMax Age: 99 Yearss

Inclusion Criteria3

Patients: 1) incident pre end stage renal disease (ESRD) enrolled within the Renal Insufficiency Clinic at the University of Alberta with an expected time to dialysis of less than 12 months* or (2) incident cases of ESRD where patients have just started chronic hemodialysis or peritoneal dialysis within the past 1 month, (3) older than 18 years of age, (4) cognitively able to complete the questionnaires and give informed consent, and (5) able to converse and complete the questionnaires in English.
Family: (1) the primary family caregiver; (2) older than 18 years of age; (3) cognitively able to complete the questionnaires and give informed consent; and (4) able to converse and complete the questionnaires in English.
Nephrologists are required to assess whether the patient is likely to progress to ESRD within 6 or 12 months upon referral to the Renal Insufficiency Clinic ( based on clinical judgment).

Exclusion Criteria1

Patients who do not meet criteria as indicated above.

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Interventions

facilitated advance care planning conversations with documentation of any resultant decision-making. This will involve a semi-structured interview that addresses goals of care and treatment options a

facilitated advance care planning conversations with documentation of any resultant decision-making. This will involve a semi-structured interview that addresses goals of care and treatment options as well as end-of-life decision making that will be lead by a single trained facilitator. The conversations will take on average 1 hour and follow-up conversations will occur on an as neded basis depending up[on the needs of the individual patients. Family members will be involved in these conversations if identified as patients as being important for decison-making. It is anticipated that for those patients who have family members that live in close proximity, that family participation will be requested by the patient.

Locations(1)

Alberta, Canada

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ACTRN12610000782033