ClinicalTrialsFinder

RecruitingACTRN12618000659202

Myeloma and Related Diseases Registry

Sponsor

Monash University

Enrollment

10,000 participants

Start Date

Jan 21, 2013

Study Type

Observational

Conditions

Plasma cell leukaemia Multiple Myeloma Plasmacytoma

Summary

This observational study is collecting information from patients to form the Myeloma and Related Diseases Registry (MRDR) Who is it for? You may be eligible for this study if you have a diagnosis of multiple myeloma, plasmacytoma, plasma cell leukaemia or monoclonal gammopathy of undetermined significance (MGUS). Study details Medical information including diagnostic tests, therapy and demographics will be provided by medical records. Participants can also provide information regarding their quality of life using a questionnaire. It is hoped this registry will enable clinicians and hospitals to provide the best possible care to people with the included conditions and allow the evaluations of new therapies.

Eligibility

Sex: Both males and femalesMin Age: 18 Yearss

Plain Language Summary

Simplified for easier understanding

This is an ongoing patient registry — a large, carefully maintained database — collecting detailed information from people diagnosed with multiple myeloma and related blood cancers, including plasmacytoma, plasma cell leukaemia, and a precursor condition called MGUS (monoclonal gammopathy of undetermined significance). Multiple myeloma is a cancer of plasma cells in the bone marrow, and this registry is designed to help doctors better understand how the disease progresses and how different treatments work in real-world patients. Participants contribute information from their medical records — things like test results, treatments received, and health outcomes — and are also invited to complete quality-of-life questionnaires. There are no experimental treatments involved; this is purely about building a rich dataset that can drive better care and inform future research. If you are 18 or older and have recently been diagnosed with multiple myeloma, plasmacytoma, plasma cell leukaemia, or MGUS (within the past three months for most conditions, or five years for MGUS), you may be eligible to participate. Joining this registry is a meaningful way to contribute to improving outcomes for everyone with these conditions.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

The Myeloma and Related Diseases Registry (MRDR) is an ongoing register of patients with a new diagnosis of multiple myeloma, plasmacytoma, plasma cell leukaemia or monoclonal gammopathy of undetermin

The Myeloma and Related Diseases Registry (MRDR) is an ongoing register of patients with a new diagnosis of multiple myeloma, plasmacytoma, plasma cell leukaemia or monoclonal gammopathy of undetermined significance (MGUS). The MRDR was established in 2012 in Australia and New Zealand. In 2018, the MRDR expanded to the Asia-pacific region and includes patients from Korea, Singapore, China/ Taiwan, and Malaysia.

Locations(50)

The Alfred - Prahran

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Austin Health - Austin Hospital - Heidelberg

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Princess Alexandra Hospital - Woolloongabba

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Royal Prince Alfred Hospital - Camperdown

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Sir Charles Gairdner Hospital - Nedlands

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

The Northern Hospital - Epping

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

St George Hospital - Kogarah

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Peter MacCallum Cancer Centre - Melbourne

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Monash Medical Centre - Clayton campus - Clayton

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Cabrini Hospital - Malvern - Malvern

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

The Canberra Hospital - Garran

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Box Hill Hospital - Box Hill

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Royal Hobart Hospital - Hobart

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Flinders Medical Centre - Bedford Park

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Latrobe Regional Hospital - Traralgon

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Concord Repatriation Hospital - Concord

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Icon Cancer Care South Brisbane - South Brisbane

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Icon Cancer Care Chermside - Chermside

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Icon Cancer Care Southport - Southport

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Icon Cancer Care Wesley - Auchenflower

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Epworth Freemasons - Melbourne

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Hollywood Private Hospital - Nedlands

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Royal Brisbane & Womens Hospital - Herston

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Lismore Base Hospital - Lismore

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Barwon Health - Geelong Hospital campus - Geelong

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Frankston Hospital - Frankston

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

St Vincent's Hospital (Melbourne) Ltd - Fitzroy

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Liverpool Hospital - Liverpool

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Sunshine Hospital - St Albans

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Ashford Cancer Centre: Adelaide Cancer Centre - Kurralta Park

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Royal North Shore Hospital - St Leonards

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Bairnsdale Regional Health Service - Bairnsdale

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Ballarat Health Services (Base Hospital) - Ballarat Central

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Border Medical Oncology - Albury

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Calvary Mater Newcastle - Waratah

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

St John of God Hospital, Geelong - Geelong

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Central Gippsland Health Service (Sale) - Sale

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Launceston General Hospital - Launceston

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Nepean Hospital - Kingswood

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

St Vincent's Hospital (Darlinghurst) - Darlinghurst

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Sunshine Coast University Hospital - Birtinya

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Toowoomba Hospital - Toowoomba

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Townsville University Hospital - Douglas

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Fiona Stanley Hospital - Murdoch

ACT,NSW,NT,QLD,SA,TAS,WA,VIC, Australia

Korea, Republic Of

Singapore

Taiwan, Province Of China

New Zealand

Malaysia

China

View Full Details on ANZCTR

For the most up-to-date information, visit the official listing.

ACTRN12618000659202

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