RecruitingACTRN12619001030167

Queensland Renal Biopsy Registry

Queensland Renal Biopsy Registry: a platform to improve patient care and validate new care strategies


Sponsor

Associate Professor Sree Krishna Venuthurupalli on behalf of Steering Committee , Queensland Renal Biopsy Registry

Enrollment

5,000 participants

Start Date

Feb 11, 2019

Study Type

Observational

Conditions

Summary

Registry of patients with biopsy-proven renal disorders enabled by a collaboration of the State Wide Clinical Renal Network , Renal Physicians from Hospital and Health Services across Pathology Queensland and CKD.QLD,The University of Queensland and governed by a steering committee. The principal aim of the Registry is to improve patient care and outcomes. The Registry will do this by profiling renal biopsy proven disorders in Queensland which will facilitate early recognition, benchmark management to best practice, and provide a platform to validate new care strategies. Specific objectives include: 1.Development of a prospective collection of clinical, laboratory, pathology, treatment and outcome data of patients with biopsy proven medical renal disease 2.Consolidation of data into a collated data set [Registry] 3.Evaluation of patient data to identify and facilitate improved clinical care and management 4.Support clinical research 5.Identification and development of health policies targeting patients with biopsy proven renal disorders 6.Develop links and collaborations with other registries nationally and internationally


Eligibility

Sex: Both males and females

Inclusion Criteria1

  • All children or adults with renal biopsy proven medical renal disease.

Exclusion Criteria3

  • Not willing to participate in the registry
  • Inability to obtain informed consent from the parent or guardian
  • Inability to understand English in the absence of an interpreter

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Interventions

Observational Study Data of the patients who underwent Kidney biopsy are collected in this registry including demographics, investigations including kidney biopsy findings, treatment administered. Pa

Observational Study Data of the patients who underwent Kidney biopsy are collected in this registry including demographics, investigations including kidney biopsy findings, treatment administered. Participants consent is waived for retrospective collection of data who underwent biopsy till 2018. New Participants ( 2019 onwards) who underwent kidney biopsy consent will be obtained to access the records . All the participants data will be collected - whenever there is occasion of service till they are followed up .


Locations(11)

Royal Brisbane & Womens Hospital - Herston

QLD, Australia

Mackay Base Hospital - Mackay

QLD, Australia

Bundaberg Hospital - Bundaberg

QLD, Australia

Rockhampton Base Hospital - Rockhampton

QLD, Australia

Toowoomba Hospital - Toowoomba

QLD, Australia

Gold Coast University Hospital - Southport

QLD, Australia

The Townsville Hospital - Douglas

QLD, Australia

Logan Hospital - Meadowbrook

QLD, Australia

Queensland Children's Hospital - South Brisbane

QLD, Australia

Hervey Bay Hospital - Pialba

QLD, Australia

Ipswich Hospital - Ipswich

QLD, Australia

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