RecruitingACTRN12624001112550

What do you think of THRIVE | Whakapuawai as a peer support group for those living with inflammatory arthritis?

A pilot study of THRIVE | Whakpuawai: A peer support group for people with inflammatory arthritis


Sponsor

Burwood Academy Trust

Enrollment

18 participants

Start Date

Jun 3, 2025

Study Type

Interventional

Conditions

Summary

THRIVE | Whakapuawai is a peer support group that focused on sharing and learning from each other’s experiences with inflammatory arthritis. It will focus the discussion on topics that have been identified as important by the co-design team to living well with inflammatory arthritis (e.g., healthy habits, psychosocial impacts, and finding what you enjoy). The sessions will be semi-structured discussions co-facilitated by a health professional and peer living with inflammatory arthritis. We aim to pilot THRIVE | Whakapuawai and explore the acceptability and feasibility of such a programme for those living with inflammatory arthritis. In addition, we will be piloting a facilitator training to complement THRIVE | Whakapuawai and exploring the acceptability, feasibility, and impacts on group leadership self-efficacy.


Eligibility

Sex: Both males and femalesMin Age: 18 Yearss

Plain Language Summary

Simplified for easier understanding

Living with inflammatory arthritis — conditions like rheumatoid arthritis, psoriatic arthritis, or lupus — can be isolating and challenging. Medical treatments address the physical symptoms, but there is often little support for the emotional and social aspects of living with a chronic illness. This study is piloting a peer support group called THRIVE (Whakapuawai in Māori) to explore whether this kind of program helps people manage their condition better. The group sessions are semi-structured conversations facilitated by both a health professional and a peer who also lives with inflammatory arthritis. Topics include healthy habits, emotional wellbeing, and finding joy and meaning despite having a chronic condition. The program was co-designed with people who have lived experience of inflammatory arthritis, so it directly reflects what matters most to participants. You may be eligible if you are 18 or older, have been diagnosed with any type of inflammatory arthritis (not just osteoarthritis), can communicate in English, and live in the Canterbury or West Coast region of New Zealand. This study is about building community and mutual support — participants learn from each other as much as from any professional.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

Interested in this trial?

Get notified about updates and connect with the research team.

Interventions

THRIVE | Whakapuawai is a co-designed peer support group that focused on sharing and learning from each other’s experiences with inflammatory arthritis. It will focus the discussion on topics that hav

THRIVE | Whakapuawai is a co-designed peer support group that focused on sharing and learning from each other’s experiences with inflammatory arthritis. It will focus the discussion on topics that have been identified as important by the co-design team to living well with inflammatory arthritis. The topics include: - Tips and tricks (talking about strategies for pain, fatigue and flare-ups) - Healthy habits (talking about helpful lifestyle actions) - Resources and decisions (talking about medication, other treatments, and where to get information you can trust) - Impacts (talking about managing impacts on mood and stress) - Voice (talking about communicating well with health professionals and the people in your life) - Enjoyment (talking about finding and doing what brings you joy) Each group will consist of 8 individuals, 6 peer participants and 2 co-facilitators (one health professional and one peer living with inflammatory arthritis). The sessions will be conducted in a hybrid format (Zoom or in-person) and consist of semi-structured discussions around the above topics. There is a total of 6 sessions, with each scheduled to run for one hour per fortnight over 12 weeks. All THRIVE | Whakapuawai facilitators will receive training delivered by the research team at least a month prior to the commencement of THRIVE | Whakapuawai. It will be delivered over the course of two four-hour sessions in a hyrbid format (Zoom and in-person). We will be utilising an attendance checklist as part of our feasibility measurement.


Locations(1)

Canterbury, New Zealand

View Full Details on ANZCTR

For the most up-to-date information, visit the official listing.

Visit

ACTRN12624001112550


Related Trials