FUNCAP-27 (Functional Capacity), A Repeat Measure Study (FARMS), A survey to establish the utility of the FUNCAP-27 for serial measurements in Myalgic Encephalomyelitis, Chronic Fatigue Syndrome (ME/CFS) and Long Covid

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Long COVID are debilitating conditions that cause overwhelming fatigue, post-exertional malaise (feeling significantly worse after any activity), unrefreshing sleep, and brain fog. People living with these conditions experience significant variation in their symptoms day to day and can find it very difficult to track their own functional capacity in a meaningful way. The FUNCAP-27 is a questionnaire designed to measure how much a person with ME/CFS or Long COVID feels they can do on any given day — essentially a snapshot of their perceived functional capacity. This study is testing whether this questionnaire can reliably detect short-term changes, both when a person is at their baseline and when they are experiencing a 'crash' (post-exertional malaise). If reliable, FUNCAP-27 could become a valuable outcome measure in future clinical trials for these conditions. You may be eligible if you are aged 18 to 70 years with an existing diagnosis of ME/CFS and/or Long COVID that meets standard criteria, and have sufficient English proficiency to complete online questionnaires. The questionnaire can be completed with carer assistance and paused if needed. This study involves no in-person visits, medications, or physical procedures — only completing three short online surveys.