RecruitingNCT00081523

Natural History of Sickle Cell Disease

Studies of the Natural History of Sickle Cell Disease

Sponsor

National Heart, Lung, and Blood Institute (NHLBI)

Enrollment

3,500 participants

Start Date

Apr 29, 2004

Study Type

OBSERVATIONAL

Conditions

Pain Crisis

Summary

This study is not a treatment protocol and no experimental treatments are involved. Study participants may be seen as needed for clinical, translational and basic research studies, or as medically indicated. Subjects will receive their general medical care outside the NIH and will be seen at our clinic or at CNHS with varying frequency. Subjects may be seen for multiple visits. Subjects may be asked to return for additional testing as needed. Clinical care for patients with sickle cell disease will be provided as appropriate through the Sickle Cell Clinic and the inpatient clinical center....

Eligibility

Min Age: 2 YearsMax Age: 90 Years

Plain Language Summary

Simplified for easier understanding

This study is tracking the long-term health of people with sickle cell disease to better understand how the condition progresses and identify better ways to manage it. **You may be eligible if...** - You are 2 years of age or older - You have a known or suspected diagnosis of sickle cell disease - You are seen at a sickle cell clinic at Children's National Hospital (CNHS) or the NIH - You (or a parent/guardian) are willing to provide informed consent **You may NOT be eligible if...** - You or your guardian are unable or unwilling to give consent or assent - You are under 2 years of age Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

Interested in this trial?

Get notified about updates and connect with the research team.

Locations(3)

Childrens National Health Center

Washington D.C., District of Columbia, United States

Suburban Hospital

Bethesda, Maryland, United States

National Institutes of Health Clinical Center

Bethesda, Maryland, United States

View Full Details on ClinicalTrials.gov

For the most up-to-date information, visit the official listing.

Visit

NCT00081523