RecruitingNCT01145196

Genotype-Phenotype Study of Patients With Plaquenil -Induced Retinal Toxicity, With Evaluation of the ABCA4 Gene

Genotype - Phenotype Study of Patients With Plaquenil-induced Retinal Toxicity


Sponsor

National Eye Institute (NEI)

Enrollment

320 participants

Start Date

Aug 23, 2010

Study Type

OBSERVATIONAL

Conditions

Summary

Background: \- Plaquenil (hydroxychloroquine) is an anti-inflammatory drug that is used to treat some autoimmune diseases such as lupus and rheumatoid arthritis. This drug can damage the retina by causing a condition called plaquenil-induced retinal toxicity, which may lead to vision loss. However, most people taking plaquenil do not develop this problem. Researchers are interested in studying whether differences in a person s genes explain why some people develop plaquenil-induced retinal toxicity while others do not. Objectives: \- To investigate possible correlations between certain genes or genetic mutations and plaquenil-induced retinal toxicity. Eligibility: * Individuals at least 18 years of age who have previously used plaquenil. * Both individuals who have and have not developed plaquenil-induced retinal toxicity will be eligible for this study. Design: * The study requires one or two visits to the National Eye Institute or an outpatient study clinic over a maximum 2-year period. * Participants will provide a personal and family medical history, and will have a full eye examination. * Participants will also provide blood samples for testing. * No treatment will be provided as part of this protocol.


Eligibility

Min Age: 18 YearsMax Age: 120 Years

Inclusion Criteria12

  • Affected participants must be 18 years of age or older and have:
  • History of systemic lupus erythematosus (SLE), rheumatoid arthritis (RA) or Sj(SqrRoot)(Delta)gren s syndrome, and
  • History of Plaquenil use, and
  • Evidence of Plaquenil -induced retinal toxicity, based on clinical findings.
  • Unaffected volunteers must be 18 years of age or older and have:
  • History of systemic lupus erythematosus (SLE), rheumatoid arthritis (RA) or Sj(SqrRoot)(Delta)gren s syndrome, and
  • History of Plaquenil use, and
  • No retinal disease upon examination within the last six months.
  • All participants must be able to:
  • Provide their own consent, and
  • Safely provide a blood sample.
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Exclusion Criteria1

  • \. Participants with other known (genetic) retinal disease including but not limited to: Stargardt s disease and cone or cone-rod dystrophy whose diagnosis preceded their Plaquenil use. Participants with no known previous genetic diagnosis but with clinical findings associated with a genetic diagnosis, such as parafoveal or macular flecks which are associated with Stargardt s disease or fundus flavimaculatus, will also be excluded.

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Locations(1)

National Institutes of Health Clinical Center

Bethesda, Maryland, United States

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NCT01145196


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