RecruitingNCT01761981

Institutional Registry of Haemorrhagic Hereditary Telangiectasia


Sponsor

Hospital Italiano de Buenos Aires

Enrollment

590 participants

Start Date

Jan 1, 2010

Study Type

OBSERVATIONAL

Conditions

Summary

The purpose of this study is to create an institutional and population-based registry of Haemorrhagic Hereditary Telangiectasia with a prospective survey based on epidemiological data, risk factors, diagnosis, prognosis, treatment, monitoring and survival. This study will also describe the occurrence of Haemorrhagic Hereditary Telangiectasia in the population of HIBA in the Central Hospital, as well as the characteristics of clinical presentation and evolution.


Eligibility

Plain Language Summary

Simplified for easier understanding

This registry collects clinical data from patients with Hereditary Hemorrhagic Telangiectasia (HHT) — a genetic disorder that causes abnormal blood vessel formation, leading to nosebleeds, GI bleeding, and potentially dangerous vessel malformations in organs like the lungs, liver, and brain. The goal is to improve understanding and management of this rare condition. You may be eligible if: - You have a confirmed diagnosis of HHT - You are currently being followed at the HHT Unit of Hospital Italiano de Buenos Aires You may NOT be eligible if: - You declined to participate or to go through the informed consent process Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(1)

Hospital Italiano de Buenos Aires

Buenos Aires, Buenos Aires, Argentina

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NCT01761981