RecruitingNCT01761981

Institutional Registry of Haemorrhagic Hereditary Telangiectasia


Sponsor

Hospital Italiano de Buenos Aires

Enrollment

590 participants

Start Date

Jan 1, 2010

Study Type

OBSERVATIONAL

Conditions

Summary

The purpose of this study is to create an institutional and population-based registry of Haemorrhagic Hereditary Telangiectasia with a prospective survey based on epidemiological data, risk factors, diagnosis, prognosis, treatment, monitoring and survival. This study will also describe the occurrence of Haemorrhagic Hereditary Telangiectasia in the population of HIBA in the Central Hospital, as well as the characteristics of clinical presentation and evolution.


Eligibility

Inclusion Criteria2

  • Patients with HHT defined.
  • Followed in Unidad HHT of Hospital Italiano de Buenos Aires.

Exclusion Criteria1

  • \. Denied to participated in the registry or inform consent process.

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Locations(1)

Hospital Italiano de Buenos Aires

Buenos Aires, Buenos Aires, Argentina

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NCT01761981