RecruitingNCT01885767
Neurofibromatosis (NF) Registry Portal
Neurofibromatosis (NF) Registry Portal Funded by Children's Tumor Foundation
Sponsor
The Children's Tumor Foundation
Enrollment
20,000 participants
Start Date
Jun 1, 2012
Study Type
OBSERVATIONAL
Conditions
Summary
The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted patient subgroups, and to supply de-identified disease data to researchers. It has the potential to become a natural history resource.
Eligibility
Inclusion Criteria3
- Diagnosed with NF1
- Diagnosed with NF2
- Diagnosed with Schwannomatosis
Exclusion Criteria1
- Failure to complete account registration
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Locations(1)
View Full Details on ClinicalTrials.gov
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NCT01885767
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