RecruitingNCT02249923

Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry


Sponsor

New York Medical College

Enrollment

2,500 participants

Start Date

Oct 1, 2014

Study Type

OBSERVATIONAL

Conditions

Summary

Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.


Eligibility

Min Age: 1 DayMax Age: 21 Years

Inclusion Criteria3

  • The subject's age of onset of pulmonary hypertension must be prior to age 18 years
  • The person providing consent must be able to read either Spanish or English.
  • The subject (and/or parent/legal guardian) must be able to provide informed consent

Exclusion Criteria2

  • Diagnosed with pulmonary hypertension after age 18
  • Refusal to sign informed consent

Locations(14)

Stanford University Medical Center

Palo Alto, California, United States

University California San Francisco

San Francisco, California, United States

Children's Hospital Colorado

Aurora, Colorado, United States

Johns Hopkins All Children's Heart Institute

St. Petersburg, Florida, United States

Johns Hopkins Children's Center

Baltimore, Maryland, United States

Boston Children's Hospital

Boston, Massachusetts, United States

Columbia University Medical Center

New York, New York, United States

Maria Fareri Children's Hospital at WMC Health/Westchester Medical Center

New York, New York, United States

Cincinnati Children's Hospital Medical Center

Cincinnati, Ohio, United States

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, United States

Vanderbilt University Medical Center

Nashville, Tennessee, United States

Texas Children's

Houston, Texas, United States

Seattle Children's Hospital

Seattle, Washington, United States

University of Alberta Edmonton

Edmonton, Alberta, Canada

View Full Details on ClinicalTrials.gov

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NCT02249923


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