RecruitingNCT02249923

Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry


Sponsor

New York Medical College

Enrollment

2,500 participants

Start Date

Oct 1, 2014

Study Type

OBSERVATIONAL

Conditions

Summary

Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.


Eligibility

Min Age: 1 DayMax Age: 21 Years

Plain Language Summary

Simplified for easier understanding

This trial is creating an information registry — a large, organized database — to track children who have been diagnosed with pulmonary hypertension, a condition where the blood pressure inside the blood vessels of the lungs is dangerously high. Researchers will use this registry to better understand the disease, identify patterns, and improve future treatments for children affected by this serious condition. **You may be eligible if...** - Your child was diagnosed with pulmonary hypertension before the age of 18, regardless of the cause - You (the parent or legal guardian) can read either English or Spanish - You and/or your child are able and willing to provide informed consent to participate in the registry **You may NOT be eligible if...** - Your child was first diagnosed with pulmonary hypertension after they turned 18 years old - You are not willing to sign the informed consent form giving permission to participate Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(14)

Stanford University Medical Center

Palo Alto, California, United States

University California San Francisco

San Francisco, California, United States

Children's Hospital Colorado

Aurora, Colorado, United States

Johns Hopkins All Children's Heart Institute

St. Petersburg, Florida, United States

Johns Hopkins Children's Center

Baltimore, Maryland, United States

Boston Children's Hospital

Boston, Massachusetts, United States

Columbia University Medical Center

New York, New York, United States

Maria Fareri Children's Hospital at WMC Health/Westchester Medical Center

New York, New York, United States

Cincinnati Children's Hospital Medical Center

Cincinnati, Ohio, United States

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, United States

Vanderbilt University Medical Center

Nashville, Tennessee, United States

Texas Children's

Houston, Texas, United States

Seattle Children's Hospital

Seattle, Washington, United States

University of Alberta Edmonton

Edmonton, Alberta, Canada

View Full Details on ClinicalTrials.gov

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NCT02249923


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