RecruitingNCT02333604

Cancer Experience Registry (CER) for Cancer Patients and Caregivers

Cancer Experience Registry: An Online Survey Research Study to Understand the Experiences of Cancer Patients and Caregivers


Sponsor

Cancer Support Community, Research and Training Institute, Philadelphia

Enrollment

15,000 participants

Start Date

Mar 1, 2013

Study Type

OBSERVATIONAL

Conditions

Summary

The Cancer Experience Registry®: An Online Survey Research Study to Understand the Experiences of Those Impacted By a Cancer Diagnosis. The Registry is a web-based platform to distribute cross-sectional and longitudinal surveys. Study surveys are designed based on input from advisor experts, including patients and caregivers, and focus on the social, emotional, physical, financial and decision-making experiences of those who have been diagnosed with cancer and their caregivers. Findings contribute toward enhancing care for patients, survivors and caregivers via programming and policy initiatives.


Eligibility

Min Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This trial is building an online registry called the Cancer Experience Registry, where cancer patients and their caregivers can voluntarily share detailed information about their experience — including quality of life, emotional wellbeing, physical side effects, and treatment journey. The data collected will help researchers understand the full impact of cancer from the patient and caregiver perspective, with the goal of improving cancer care. **You may be eligible if...** - You have received a cancer diagnosis at any point in your life, regardless of cancer type or stage, OR - You are currently or have previously been a caregiver — a family member, friend, or close person — for someone diagnosed with cancer - You live in the United States, a U.S. territory, or Canada - You can read and understand English **You may NOT be eligible if...** - There are no stated exclusion criteria for this registry — all qualifying individuals may enroll Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(1)

Cancer Support Community Research & Training Institute

Washington D.C., District of Columbia, United States

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NCT02333604


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