RecruitingNCT02497521

The German ADPKD Tolvaptan Treatment Registry

The German ADPKD Tolvaptan Treatment Registry is a Prospective, Observational, Multicentric Study of Patients Suffering From ADPKD That Are Considered for Tolvaptan Treatment.


Sponsor

University of Cologne

Enrollment

2,000 participants

Start Date

Nov 1, 2015

Study Type

OBSERVATIONAL

Conditions

Summary

The German ADPKD Tolvaptan Treatment Registry is a prospective, observational, multicentric study of patients suffering from ADPKD that are considered for tolvaptan treatment. All ADPKD patients that are evaluated for treatment indication, or that are planned to be treated with tolvaptan, or that are already treated with tolvaptan are eligible. This registry is designed to provide "real-world" data on treatment management of patients with ADPKD.


Eligibility

Min Age: 18 Years

Inclusion Criteria3

  • Age \> 18 years
  • ADPKD proven by positive family history and evidence of renal cysts or diagnosed by treating physician
  • Presentation at our center for tolvaptan treatment indication, or tolvaptan treatment planned, or tolvaptan already started

Exclusion Criteria3

  • Patients not capable of giving informed consent
  • End stage renal disease requiring renal replacement therapy
  • Patients receiving tolvaptan as "off-label use"

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Locations(12)

Fachinternistische Gemeinschaftspraxis Markgraeferland

Müllheim, Baden-Wurttemberg, Germany

University Hospital of Wuerzburg, ZIM

Würzburg, Bavaria, Germany

Medizinische Hochschule Hannover

Hanover, Lower Saxony, Germany

University Hospital of Cologne

Cologne, North Rhine-Westphalia, Germany

Nieren- und Diabeteszentrum Nettetal-Lobberich

Nettetal, North Rhine-Westphalia, Germany

University Hospital of Leipzig, Nephrologische Ambulanz

Leipzig, Saxony, Germany

Praxisgemeinschaft Dr. Peschel

Leipzig, Saxony, Germany

University Hospital of Schleswig-Holstein

Lübeck, Schleswig-Holstein, Germany

Nierenzentrum Lübeck

Lübeck, Schleswig-Holstein, Germany

University Hospital of Jena

Jena, Thuringia, Germany

Charité Universitätsmedizin Berlin

Berlin, Germany

Robert-Bosch-Krankenhaus

Stuttgart, Germany

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NCT02497521


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