RecruitingNCT02852031

National Collaborative to Improve Care of Children With Complex Congenital Heart Disease

National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) - A Collaborative Initiative to Improve Care of Children With Complex Congenital Heart Disease

Sponsor

Children's Hospital Medical Center, Cincinnati

Enrollment

1,000 participants

Start Date

May 1, 2016

Study Type

OBSERVATIONAL

Conditions

Hypoplastic Left Heart Syndrome (HLHS)

Summary

The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.

Eligibility

Max Age: 15 Months

Inclusion Criteria2

Fetuses or newborns diagnosed with HLHS or other univentricular condition
Intended to undergo Norwood procedure

Exclusion Criteria1

None

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Interventions

OTHERCollaborative Learning Network

Locations(63)

Children's of Alabama

Birmingham, Alabama, United States

Phoenix Children's Hospital

Phoenix, Arizona, United States

Arkansas Children's Hospital

Little Rock, Arkansas, United States

Children's Hospital Los Angeles

Los Angeles, California, United States

UCLA Mattel Children's Hospital

Los Angeles, California, United States

Lucile Packard Children's Hospital-Stanford

Palo Alto, California, United States

Sutter Medical Center-Sacramento

Sacramento, California, United States

UC Davis Children's Hospital

Sacramento, California, United States

Rady Children's Hospital

San Diego, California, United States

Children's Hospital Colorado

Aurora, Colorado, United States

Nemours Cardiac Center, A.I DuPont Hospital for Children

Wilmington, Delaware, United States

Children's National Medical Center

Washington D.C., District of Columbia, United States

University of Florida-UF Health

Gainesville, Florida, United States

Nicklaus Children's Hospital

Miami, Florida, United States

Arnold Palmer Children's Hospital

Orlando, Florida, United States

Johns Hopkins All Children's Hospital

St. Petersburg, Florida, United States

Children's Healthcare of Atlanta

Atlanta, Georgia, United States

Ann and Robert H. Lurie Children's Hospital of Chicago

Chicago, Illinois, United States

Advocate Children's Hospital

Oak Lawn, Illinois, United States

Riley Hospital for Children at IU Health

Indianapolis, Indiana, United States

University of Iowa Children's Hospital

Iowa City, Iowa, United States

Norton Children's Hospital

Louisville, Kentucky, United States

Ochsner Hospital For Children

Jefferson, Louisiana, United States

Children's Hospital New Orleans

New Orleans, Louisiana, United States

University of Maryland Children's Hospital

Baltimore, Maryland, United States

Boston Children's Hospital

Boston, Massachusetts, United States

University of Michigan C.S. Mott Children's Hospital

Ann Arbor, Michigan, United States

Children's Hospital and Clinics of Minnesota

Minneapolis, Minnesota, United States

University of Minnesota Masonic Children's Hospital

Minneapolis, Minnesota, United States

Batson Children's Hospital-University of Mississippi Medical Center

Jackson, Mississippi, United States

Children's Mercy Hospitals and Clinics

Kansas City, Missouri, United States

St. Louis Children's Hospital

St Louis, Missouri, United States

Children's Hospital and Medical Center-Omaha

Omaha, Nebraska, United States

Cohen Children's Medical Center Northwell Health

New Hyde Park, New York, United States

NYU Medical Center

New York, New York, United States

Columbia University- NY Presbyterian

New York, New York, United States

University of Rochester Medical Center

Rochester, New York, United States

The Children's Hospital of Montefiore

The Bronx, New York, United States

Levine Children's Hospital-Sanger Heart and Vascular Institute

Charlotte, North Carolina, United States

Duke University Medical Center

Durham, North Carolina, United States

Akron Children's Hospital

Akron, Ohio, United States

Cincinnati Children's Hospital

Cincinnati, Ohio, United States

University Hospitals Case Medical Center - Rainbow Babies & Children's Hospital, Pediatric Heart Center

Cleveland, Ohio, United States

Cleveland Clinic Children's Hospital

Cleveland, Ohio, United States

Nationwide Children's Hospital

Columbus, Ohio, United States

Doernbecher Children's Hospital

Portland, Oregon, United States

PennState Hershey Medical Center--PennState Health Children's Hospital

Harrisburg, Pennsylvania, United States

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, United States

Children's Hospital of Pittsburgh of UPMC

Pittsburgh, Pennsylvania, United States

Medical University of South Carolina

Charleston, South Carolina, United States

Le Bonheur Children's Hospital

Memphis, Tennessee, United States

Monroe Carell Jr. Children's Hospital at Vanderbilt

Nashville, Tennessee, United States

Children's Medical Center of Dallas

Dallas, Texas, United States

Cook Childrens Medical Center

Fort Worth, Texas, United States

Texas Children's Hospital

Houston, Texas, United States

Primary Children's Hospital

Salt Lake City, Utah, United States

UVA Children's Hospital

Charlottesville, Virginia, United States

Inova Children's Hospital

Falls Church, Virginia, United States

Seattle Children's Hospital

Seattle, Washington, United States

University of Wisconsin, American Family Children's

Madison, Wisconsin, United States

Children's Hospital of Wisconsin

Milwaukee, Wisconsin, United States

The Hospital for Sick Kids- University of Toronto

Toronto, Ontario, Canada

Evelina London Children's Healthcare

London, United Kingdom

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