RecruitingNCT02918032

International Registry Study of Neutral Lipid Storage Disease (NLSD) / Triglyceride Deposit Cardiomyovasculopathy (TGCV) and Related Diseases

Sponsor

Translational Research Center for Medical Innovation, Kobe, Hyogo, Japan

Enrollment

120 participants

Start Date

Jan 1, 2014

Study Type

OBSERVATIONAL

Conditions

Neutral Lipid Storage Disease

Summary

This study aims to understand the state of onset of NLSD(neutral lipid storage disease) / TGCV(triglyceride deposit cardiovasculopathy) worldwide, background information of affected patients, and natural history of the disease, as well as exploring the prognostic factors and assessing the efficacy of disease-specific treatment.

Eligibility

Plain Language Summary

Simplified for easier understanding

This clinical trial is studying a new treatment for people with neutral lipid storage disease. The study is currently recruiting participants at 15 locations.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(15)

Stanford University

Stanford, California, United States

Columbia University

New York, New York, United States

University of Graz

Graz, Styria, Austria

Peking University First Hospital

Beijing, Beijing Municipality, China

Pitié-Salpêtrière Hospital

Paris, Paris, France

Ludwig-Maximilians University

Munich, Bavaria, Germany

Sapienza University of Rome

Rome, Lazio, Italy

A.C.O. San Filippo Neri Hospital

Rome, Lazio, Italy

Catholic University

Milan, Lombardy, Italy

University of Padova

Padova, Veneto, Italy

Graduate School of Osaka University

Suita, Osaka, Japan

National Center of Neurology and Psychiatry

Kodaira, Tokyo, Japan

Maastricht University

Maastricht, Limburg, Netherlands

Harefield Hospital

Harefield, London, United Kingdom

New Castle University

Newcastle upon Tyne, Tyne and Wear, United Kingdom

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NCT02918032