China Registry for Genetic / Metabolic Liver Diseases
A Nation-wide Hospital-based Registry:China Registry for Genetic / Metabolic Liver Diseases
Beijing Friendship Hospital
20,000 participants
Jun 13, 2015
OBSERVATIONAL
Conditions
Summary
CR-GMLD registry started on June 13, 2015 to collect cases of genetic/metabolic liver diseases from tertiary or secondary hospitals in mainland China. Demographics, diagnosis, laboratory test results, family history and prescriptions were recorded. Patients' whole blood and serum were collected for genetic testing and future researches. These patients will be followed-up every six to twelve months.
Eligibility
Inclusion Criteria1
- Patients who were diagnosed or possibly diagnosed with Wilson's disease, hereditary hemochromatosis, hereditary hyperbilirubinemias, inherited cholestatic liver disease or other genetic/metabolic liver diseases.
Exclusion Criteria1
- Patients who are unable or unwilling to provide informed consent.
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Interventions
Standard of care according to the updated national and/or international guidelines
Locations(12)
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NCT03131427