RecruitingNCT03154697

Development of Clinical Database of Individuals With Smith-Magenis Syndrome and Sleep Disturbances

Development of Clinical Database of Individuals With Smith-Magenis Syndrome


Sponsor

Vanda Pharmaceuticals

Enrollment

1,000 participants

Start Date

Jan 1, 2016

Study Type

OBSERVATIONAL

Conditions

Summary

This database will be used to better understand the sleep problems of people with SMS. This clinical database will be a part of a larger Smith-Magenis Patient Registry used to create an awareness campaign around SMS and the sleep disturbances that are characteristic of the disorder.


Eligibility

Min Age: 3 YearsMax Age: 65 Years

Inclusion Criteria1

  • Parent or legal guardian of individual with Smith-Magenis Syndrome

Exclusion Criteria1

  • Not legal guardian of individual with SMS

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Interventions

OTHERData collection of sleep disturbances in individuals with SMS

Data related to Smith-Magenis syndrome and sleep disturbances are collected through a web or phone survey


Locations(1)

Vanda Pharmaceuticals

Washington D.C., District of Columbia, United States

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NCT03154697