RecruitingNCT03193476

Registry for Patients With X-Linked Hypophosphatemia

An International, Multicentre, Prospective, Non-interventional Observational Registry for Patients With X-Linked Hypophosphatemia (XLH)

Sponsor

Kyowa Kirin Pharmaceutical Development Ltd

Enrollment

1,343 participants

Start Date

Sep 12, 2017

Study Type

OBSERVATIONAL

Conditions

X-linked Hypophosphatemia

Summary

This is an international, multicentre, prospective, non-interventional, observational Registry of patients with X-Linked hypophosphatemia (XLH). The main objective of this XLH Registry is to collect data to characterise the treatment, progression and long-term outcomes of XLH in both adult and paediatric settings.

Eligibility

Plain Language Summary

Simplified for easier understanding

This clinical trial is studying a new treatment for people with x-linked hypophosphatemia. The study is currently recruiting participants at 118 locations.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(118)

Hopital Universitaire des Enfants Reine Fabiola

Brussels, Belgium

Universitair Ziekenhuis Brussel

Brussels, Belgium

Cliniques Universitaires Saint-Luc

Brussels, Belgium

UZA

Edegem, Belgium

Universitair Ziekenhuis Gent

Ghent, Belgium

UZ Leuven

Leuven, Belgium

CHU de Liège

Liège, Belgium

SHATPD "Prof Ivan Mitev" EAD

Sofia, Bulgaria

UMHAT "SofiaMed", OOD

Sofia, Bulgaria

Children Hospital

Brno, Czechia

Fakultni nemocnice v Motole

Prague, Czechia

Aalborg University Hospital

Aalborg, Denmark

Århus Universitetshospital - Aarhus sygehus

Aarhus, Denmark

Århus Universitetshospital

Aarhus, Denmark

Hospital South West Jutland

Esbjerg, Denmark

Rigshospitalet - Paediatric

København Ø, Denmark

Rigshospitalet

København Ø, Denmark

OUH

Odense, Denmark

Groupe Hospitalier Pellegrin - Hôpital des Enfants

Bordeaux, France

CHU de Lyon - Hôpital Femme Mere Enfant

Bron, France

CHRU Lille

Lille, France

Hopital Roger Salengro - CHU Lille

Lille, France

Hopital Arnaud de Villeneuve

Montpellier, France

CHU de Nantes

Nantes, France

Hôpital Cochin

Paris, France

CHU Paris Sud - Hopital Bicêtre

Paris, France

Hôpital Bicêtre

Paris, France

"Hopital Pierre-Paul Riquet Centre de Rhumatologie"

Toulouse, France

Hopital Purpan

Toulouse, France

Klinikum Ernst-von-Bergmann Potsdam und Bad Belzig

Bad Belzig, Germany

Uniklinikum Bochum

Bochum, Germany

Uniklinikum Koeln

Cologne, Germany

MVZ Dr. Eberhard & Partner

Dortmund, Germany

Universitaetsklinikum Freiburg

Freiburg im Breisgau, Germany

Medizinische Hochschule Hannover

Hanover, Germany

Universitaetsklinikum

Leipzig, Germany

Hormon and Stoffwechselzentrum

Mainz, Germany

Semmelweis Egyetem

Budapest, Hungary

Semmelweis Egyetem

Budapest, Hungary

The Children's University Hospital

Dublin, Ireland

Rambam Health Care Center

Haifa, Israel

Schneider Medical Center

Petah Tikva, Israel

Sheba Medical Center

Ramat Gan, Israel

Dana-Dwek Children's Hospital

Tel Aviv, Israel

Azienda Ospedaliero Universitaria Consorziale Policlinico di Bari

Bari, Italy

AO S. Pio G. Rumno

Benevento, Italy

Azienda Ospedaliera Universitaria Policlinico Sant'Orsola Malpighi

Bologna, Italy

Presidio Ospedaliero Di Summa Antonio Perrino

Brindisi, Italy

Azienda Ospedaliera Brotzu

Cagliari, Italy

Azienda Ospedaliera Universitaria Careggi

Florence, Italy

Istituto Giannina Gaslini-Ospedale Pediatrico IRCCS

Genova, Italy

ICOT-Istituto Chirurgico Ortopedico Traumatologico

Latina, Italy

Azienda Ospedaliera Universitaria Policlinico G. Martino

Messina, Italy

Ospedale San Raffaele - Adult

Milan, Italy

Ospedale San Raffaele

Milan, Italy

Azienda Ospedaliera di Padova

Padova, Italy

Azienda Ospedaliera di Padova

Padua, Italy

Istituto Auxologico Italiano -I.R.C.C.S.

Piancavallo, Italy

Stabilimento Ospedaliero Santa Chiara

Pisa, Italy

Ospedale Pediatrico Bambino Gesù

Roma, Italy

Azienda Ospedaliera Città della Salute e della Scienza di Torino (Presidio Sant'Anna)

Torino, Italy

Azienda Ospedaliero-Universitaria Città della Salute e della Scienza di Torino

Torino, Italy

I.R.C.C.S. Burlo Garofolo

Trieste, Italy

Children's Clinical University Hospital

Riga, Latvia

Universitair Medisch Centrum Groningen

Groningen, Netherlands

Oslo University Hospital

Oslo, Norway

Oslo Universitetssykehus HF, Ulleval

Oslo, Norway

St. Olav's University Hospital

Trondheim, Norway

Hospital Pediatrico de Coimbra

Coimbra, Portugal

Centro Hospitalar de Lisboa Central, E.P.E. - Hospital Dona Estefânia

Lisbon, Portugal

Centro Hospitalar de Lisboa Norte, E.P.E. - Hospital de Santa Maria

Lisbon, Portugal

Centro Hospitalar do Porto, E.P.E. - Hospital de Santo António

Porto, Portugal

Hospital de Sao Joao

Porto, Portugal

National Institute of Childrenś Health NUDCH

Bratislava, Slovakia

University Clinical Centre Ljubljana

Ljubljana, Slovenia

Hospital de Cruces

Barakaldo, Spain

Hospital Universitari Vall d'Hebron

Barcelona, Spain

Hospital Clinic de Barcelona

Barcelona, Spain

Hospital General Universitario Santa Lucía

Cartagena, Spain

Hospital Universitario Virgen de la Arrixaca

El Palmar, Spain

Hospital Sant Joan de Deu

Esplugues de Llobregat, Spain

Complejo Hospitalario Universitario Insular Materno-Infantil

Las Palmas de Gran Canaria, Spain

Hospital Infantil Universitario Niño Jesus

Madrid, Spain

Hospital Universitario Central de Asturias

Oviedo, Spain

Hospital Central de Asturias

Oviedo, Spain

Hospital Universitario Nuestra Señora de la Candelaria

Santa Cruz de Tenerife, Spain

Queen Silvia Children's Hospital

Gothenburg, Sweden

Lund University

Lund, Sweden

Karolinska Institute

Stockholm, Sweden

Karolinska Institute (Pediatric)

Stockholm, Sweden

Inselspital Bern

Bern, Switzerland

Hopitaux Universitaires de Geneve (HUG)

Geneva, Switzerland

Centre Hopitalier Universitaire Vaudois

Lausanne, Switzerland

Centre Hopitalier Universitaire Vaudois

Lausanne, Switzerland

Kantonsspital St. Gallen

Sankt Gallen, Switzerland

Klinik Hirslanden Zuerich

Zurich, Switzerland

Royal Belfast Hospital for Sick Children

Belfast, United Kingdom

Birmingham Children's Hospital

Birmingham, United Kingdom

University Hospitals Bristol and Weston

Bristol, United Kingdom

Addenbrooke's Hospital

Cambridge, United Kingdom

University Hospital of Wales

Cardiff, United Kingdom

Western General Hospital

Edinburgh, United Kingdom

Royal Hospital for Sick Children and Young People

Edinburgh, United Kingdom

Gartnavel General Hospital

Glasgow, United Kingdom

Queen Elizabeth University Hospital

Glasgow, United Kingdom

Raigmore Hospital

Inverness, United Kingdom

Leeds General Infirmary

Leeds, United Kingdom

Alder Hey Children's Hospital

Liverpool, United Kingdom

Royal Liverpool University Hospital

Liverpool, United Kingdom

National Hospital for Neurology and Neurosurgery

London, United Kingdom

Evelina Childrens Hospital

London, United Kingdom

Great Ormond Street Hospital for Children

London, United Kingdom

Royal Manchester Children's Hospital

Manchester, United Kingdom

Oxford University Hospital NHS Trust

Oxford, United Kingdom

Sheffield Childrens Hospital

Sheffield, United Kingdom

Sheffield Teaching Hospitals

Sheffield, United Kingdom

Southampton General Hospital

Southampton, United Kingdom

Stanmore Royal Orthopaedic Hospital

Stanmore, United Kingdom

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