RecruitingNCT03231644

Fibrous Dysplasia, McCune-Albright Syndrome Patient Registry


Sponsor

Tovah Burstein

Enrollment

600 participants

Start Date

Oct 31, 2016

Study Type

OBSERVATIONAL

Conditions

Summary

The FD/MAS Patient Registry is an IRB-approved research study that that invites the patients and families to help answer some of the biggest questions about FD/MAS by completing questionnaires about their lives with FD or MAS. Have you enrolled in the FD/MAS Patient Registry yet? Are you up-to-date on your surveys? Take a trip to www.fdmasregistry.org today to learn more about the project, enroll, complete your surveys, or make sure you aren't due to provide more info! The FD/MAS Patient Registry: Your story powers research.


Eligibility

Inclusion Criteria3

  • clinical diagnosis of fibrous dysplasia
  • clinical diagnosis of McCune-Albright syndrome
  • clinical diagnosis of Mazabraud's syndrome

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Locations(1)

Tovah Burstein

Bethesda, Maryland, United States

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NCT03231644


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