Fibrous Dysplasia, McCune-Albright Syndrome Patient Registry
Tovah Burstein
600 participants
Oct 31, 2016
OBSERVATIONAL
Conditions
Summary
The FD/MAS Patient Registry is an IRB-approved research study that that invites the patients and families to help answer some of the biggest questions about FD/MAS by completing questionnaires about their lives with FD or MAS. Have you enrolled in the FD/MAS Patient Registry yet? Are you up-to-date on your surveys? Take a trip to www.fdmasregistry.org today to learn more about the project, enroll, complete your surveys, or make sure you aren't due to provide more info! The FD/MAS Patient Registry: Your story powers research.
Eligibility
Inclusion Criteria3
- clinical diagnosis of fibrous dysplasia
- clinical diagnosis of McCune-Albright syndrome
- clinical diagnosis of Mazabraud's syndrome
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Locations(1)
View Full Details on ClinicalTrials.gov
For the most up-to-date information, visit the official listing.
NCT03231644