CAPRI National Juvenile Idiopathic Arthritis Registry
The Canadian Alliance of Pediatric Rheumatology Investigators National Juvenile Idiopathic Arthritis Registry
University of British Columbia
1,238 participants
Feb 1, 2017
OBSERVATIONAL
Conditions
Summary
Juvenile Idiopathic Arthritis (JIA) is a disorder of unknown cause characterized by chronic inflammation of the joints and other organs. It affects about 1 in a 1000 Canadian children and if untreated it can produce lifelong disability. The Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) includes most pediatric rheumatologists in Canada. They have successfully collaborated for the past 20 years producing groundbreaking research on the modern course and outcomes of JIA. The CAPRI JIA Registry is an ongoing universal registry of Canadian children with JIA that collects longitudinal data on disease course, outcomes and adverse events to inform healthcare decisions and to gain new insights into the disease and its treatment.
Eligibility
Inclusion Criteria3
- All patients newly diagnosed with JIA within the last 3 months
- All patients who participated in the original ReACCh-Out study
- LEAP study patients from 'newly diagnosed' and 'ReACCh-Out' cohorts who have completed their two year follow up in LEAP
Exclusion Criteria3
- Patients with an unconfirmed JIA diagnosis
- Patients diagnosed with JIA more than 3 months prior to the clinic visit, who were not followed in LEAP and /or ReACCh-Out studies.
- If the family as a whole is unable to answer questionnaires in English or French
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Locations(15)
View Full Details on ClinicalTrials.gov
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NCT03245801