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RecruitingNCT03789721

Adrenoleukodystrophy National Registry Study

Sponsor

Masonic Cancer Center, University of Minnesota

Enrollment

1,000 participants

Start Date

May 1, 2019

Study Type

OBSERVATIONAL

Conditions

AdrenoleukodystrophyALD (Adrenoleukodystrophy)Cerebral Adrenoleukodystrophy

Summary

The aim of this registry to understand the natural history and disease progression in ALD and potentially develop bio-markers using the biospecimens collected using this registry.

Eligibility

Plain Language Summary

Simplified for easier understanding

This clinical trial is studying Biospecimen Sample Collection and Medical Record Abstraction for people with ald (adrenoleukodystrophy), adrenoleukodystrophy, and other related conditions. The study is currently recruiting participants at 1 location.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

OTHERMedical Record Abstraction

Collect clinical and epidemiological data through medical record abstraction and self-reported questionnaire survey semi-annually.

OTHERBiospecimen Sample Collection

Collect research samples, when feasible for those diagnosed with ALD.

Locations(1)

Masonic Cancer Center at University of Minnesota

Minneapolis, Minnesota, United States

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NCT03789721

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