RecruitingNCT03990428
Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases
A Study to Identify the Supportive Care Needs of Caregivers of Patients With Erdheim-Chester Disease and Other Histiocytic Diseases
Sponsor
Memorial Sloan Kettering Cancer Center
Enrollment
250 participants
Start Date
Jun 14, 2019
Study Type
OBSERVATIONAL
Conditions
Summary
This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases?
Eligibility
Min Age: 18 Years
Inclusion Criteria3
- Self-identified informal caregiver (family member or friend who provides unpaid support) for a patient with Erdheim-Chester Disease (or LCH, RDD, or JXG for the exploratory aim).
- Proficiency to complete study assessments in English, evaluated at the time of consent.
- Age 18 or over.
Exclusion Criteria2
- Participant unwilling to sign consent.
- Participant unable to complete web-based assessments.
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Interventions
BEHAVIORALonline surveys
Survey data about supportive care needs, mood, and the experience of IC's finding meaning and purpose in the caregiving experience.
Locations(1)
View Full Details on ClinicalTrials.gov
For the most up-to-date information, visit the official listing.
NCT03990428