Development and Validation of Family Adjustment Inventory
Development and Validation of a New Instrument to Evaluate Parents' Adjustment to Their Child's Chronic Disease: the Family Adjustment Inventory
Meyer Children's Hospital IRCCS
900 participants
Mar 15, 2016
OBSERVATIONAL
Conditions
Summary
A diagnosis of chronic disease in childhood may be disruptive for families. Some parents show good adjustment, while others may have more difficulties. Aim of this study is to develop and validate a new psychometric instrument to help precociously detect parents' vulnerability in the process of adjustment to their child's chronic disease at different times of care.
Eligibility
Inclusion Criteria3
- consent for participating in the study
- having a child suffering from a chronic illness and treated in the hospital in the following specialties: onco-hematology, neuro-oncology, diabetology, cystic fibrosis, metabolic disease, gastroenterology, cardiology, nephrology, rheumatology, allergology, pneumology, immunology, intensive care unit
- italian speaking
Exclusion Criteria2
- cognitive impairment
- no good knowledge of italian language
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Interventions
Administration of Family Adjustment Inventory in the version "Only-child"
Administration of Family Adjustment Inventory in the version "Sibling"
This form requires informations about child, respondent and partner (if any), and evaluates the presence of any distressful event happened during the last year
Locations(1)
View Full Details on ClinicalTrials.gov
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NCT04049890