RecruitingNCT04064307

Myotubular and Centronuclear Myopathy Patient Registry

Sponsor

Newcastle-upon-Tyne Hospitals NHS Trust

Enrollment

500 participants

Start Date

Mar 26, 2013

Study Type

OBSERVATIONAL

Conditions

Centronuclear Myopathy Myotubular Myopathy Myotubular Myopathy 1 Myotubular (Centronuclear) Myopathy Centronuclear Myopathy, X-Linked X-linked Myotubular Myopathy

Summary

The Myotubular and Centronuclear Myopathy Patient Registry (also referred to as the 'MTM and CNM Registry') is an international, patient-reported database specific to these conditions. More details and online registration are available at www.mtmcnmregistry.org.

Eligibility

Plain Language Summary

Simplified for easier understanding

This clinical trial is studying a new treatment for people with centronuclear myopathy, centronuclear myopathy, x-linked, and other related conditions. The study is currently recruiting participants at 1 location.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(1)

Newcastle University

Newcastle upon Tyne, Tyne and Wear, United Kingdom

View Full Details on ClinicalTrials.gov

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NCT04064307

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