RecruitingNCT04157049
Alpha-1 Research Registry
Alpha-1 Research Registry Protocol
Sponsor
Alpha-1 Foundation
Enrollment
4,000 participants
Start Date
Jun 20, 2019
Study Type
OBSERVATIONAL
Conditions
Summary
The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments and a cure for Alpha-1.
Eligibility
Inclusion Criteria2
- Patients diagnosed with Alpha-1 Antitrypsin Deficiency (PiZZ, PiZNull, PiSZ etc.)
- Alpha-1 carriers (PiMZ, PiMS etc.)
Exclusion Criteria2
- Failure to provide informed consent
- Normal healthy individuals (MM)
Locations(1)
View Full Details on ClinicalTrials.gov
For the most up-to-date information, visit the official listing.
NCT04157049