RecruitingNot ApplicableNCT04197258

Evaluation of the Impact of an Individual Peer Support Intervention for Stroke Patients When Returning Home: a Mixed Methods Pilot Study

Sponsor

Hospices Civils de Lyon

Enrollment

40 participants

Start Date

Oct 9, 2020

Study Type

INTERVENTIONAL

Conditions

Stroke

Summary

Going back home following a stroke is a key step for the patient and his or her relatives. Due to the brutality of stroke and increasingly shorter in-hospital lengths of stay, patients and their families must adapt quickly to the patient's new health functioning and the new caregiving and support role for family members. Peer support could be an innovative and inexpensive approach to addressing these issues. Peer-helpers are patient-partners who put their experiential knowledge from life with the disease at the disposal of other patients to offer them social and emotional support in the management of the disease in connection with care, social and community structures. Group peer support programs face organizational challenges and fail to address the full range of patient needs for stroke home visits. Individualized and more flexible support could better meet the needs of patients. Our hypothesis is that individual peer support improves quality of life and patient empowerment during the discharge period compared to usual practice.

Eligibility

Min Age: 18 Years

Inclusion Criteria8

Adult patient,
Having had a first confirmed, ischemic or hemorrhagic stroke
Managed in the participating rehabilitation center
Whose discharge to home directly from the rehabilitation center is planned
Presenting a modified Rankin score of 1 to 3 when deciding to leave the stroke center
Having given its written consent
Whose main residence is located in the Rhône department
Aphasic patients may be included if a caregiver can follow up with the case manager

Exclusion Criteria6

Patient living in an institution prior to stroke
included in a gerontological network before stroke
Patient unable to understand quality of life questionnaires
Patient with unstable medical or psychological conditions who, in the opinion of the investigator, could lead the subject to be non-compliant or uncooperative during the study or could compromise patient safety or participation in the study
Patient under guardianship or curatorship
Patient not affiliated to a social health insurance

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Interventions

OTHERPeer support

The intervention studied is the psycho-social support by a peer-helper to the patients and their main informal caregiver during the return home following a stay in rehabilitation center for a stroke. Peer support intervention will be based on evidence, Bandura's social learning and social support theory, and the results of our ongoing study of the needs of patients and their caregivers as a result of returning home (Stroke69). It will include a meeting before the discharge and a regular follow-up for 6 months (face-to-face meetings, virtual or by phone), adapted to the needs of the patient and his caregiver, taking into account the social environment and in connection with the devices existing sanitary and social.