RecruitingNot ApplicableNCT04258280

Improving Genetic Counseling for BRCA+ Mothers

Parent Communication Study IV: Improving Genetic Counseling for BRCA+ Mothers


Sponsor

Georgetown University

Enrollment

200 participants

Start Date

Jul 1, 2020

Study Type

INTERVENTIONAL

Conditions

Summary

Genetic counseling and testing for hereditary breast cancer may reveal that you, and possibly your blood relatives, are at increased risk for the disease across the lifespan. This includes biological children, both male and female. We do not yet know the best ways to educate mothers who have a risk gene (are BRCA+) about whether, when, and how to share genetic information with their children or manage their thoughts and feelings. The purpose of this study is to help mothers make more informed choices about talking with children about hereditary breast cancer, provide them with age-and gender-appropriate information and emotional support, and improve their psychological well-being.


Eligibility

Sex: FEMALEMin Age: 18 Years

Inclusion Criteria3

  • Mothers/primary caregivers to adolescents/young adults ages 13-24 years-old.
  • Participating in genetic testing for hereditary breast cancer.
  • Adequately speak/read English.

Interventions

BEHAVIORALEducation and counseling

Education includes a workbook, counseling includes peer support.

BEHAVIORALEducation

Education includes a workbook.


Locations(1)

MedStar Georgetown University Hospital

Washington D.C., District of Columbia, United States

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NCT04258280


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