RecruitingNCT04528446

The Impact of Glomerular Disorders on Bone Quality and Strength


Sponsor

Columbia University

Enrollment

270 participants

Start Date

Jun 14, 2019

Study Type

OBSERVATIONAL

Conditions

Summary

The primary objectives of this study are to: (1) determine the impact of glomerular disease on bone strength and (2) investigate the pathophysiologic underpinnings of impaired bone strength in glomerular disease.


Eligibility

Min Age: 5 YearsMax Age: 55 Years

Inclusion Criteria8

  • CureGN participant or CureGN Eligible
  • CureGN eligible is defined as having a diagnosis of Glomerulonephropathy (GN). Patients would otherwise be enrolled in be in CureGN study, except for lacking a minor entry criteria, such as:
  • First diagnostic kidney biopsy within 5 years of CureGN study enrollment
  • Access to first kidney biopsy report and/or slides or not being interested in study participation.
  • Males or females 5 to 55 years (premenopausal for women)
  • Females must have a negative urine/serum pregnancy test
  • Stable doses of nutritional vitamin D or active vitamin D therapy for at least 3 months before enrollment ((if on either form of Vitamin D)
  • Consent/Parental/guardian permission (informed consent) and if appropriate, child assent

Exclusion Criteria11

  • Chronic Dialysis
  • Solid organ transplantation
  • Lower extremity amputations or non-ambulatory
  • Malignancy requiring chemotherapy or metastatic to bone
  • Metabolic bone disease (e.g., Paget's disease, primary hyperparathyroidism)
  • Endocrinopathy (current hyperthyroidism or untreated hypothyroidism, Cushing's syndrome)
  • Medical diseases (end stage liver disease, heart or lung disease, intestinal malabsorption)
  • Those treated with bisphosphonates, teriparatide, calcitonin, selective estrogen receptor modulators, estrogen, or phenytoin in the past 12 months
  • Previous bilateral wrist and tibia fractures
  • Pregnant or lactating females
  • Parents/guardians or participants who, in the opinion of the Investigator, may be non-compliant with study schedules or procedures.

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Interventions

RADIATIONDual-energy X-ray absorptiometry

DXA whole body, hip, spine, and radius at baseline, and 12-month visit.

RADIATIONHigh Resolution Peripheral Quantitative Computed Tomography (HR-pQCT)

HR-pQCT of the radius and tibia at baseline, and 12-month visit.

OTHERBlood draw and Urine collection

The blood draw can be completed +/- 3 weeks from baseline or 12-month visit.

OTHERQuestionnaires

Questionnaires regarding fracture history, physical activity and dietary intake at baseline, and 12-month visit.


Locations(2)

Columbia University Irving Medical Center

New York, New York, United States

The Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, United States

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NCT04528446


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