Interview Study of Adult and Child Patients and Parents of Children With Swelling Due to Nephrotic Syndrome.
Preparing a Clinical Outcomes Assessment Set for Nephrotic Syndrome
University of Michigan
150 participants
Apr 18, 2022
OBSERVATIONAL
Conditions
Summary
Researchers from the University of Michigan and Northwestern University are studying people's experiences with swelling caused by Nephrotic Syndrome. Interviews with patients (child and adult) and parents of young children will be conducted. The information collected from the interviews will be used to develop a survey to use when testing new medications for Nephrotic Syndrome. Please consider participating in a 1-hour long interview with the Prepare-NS research study to discuss children and adults experiences with swelling.
Eligibility
Plain Language Summary
Simplified for easier understanding
This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.
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Interventions
Concept Elicitation Interviews are used to create tools followed by Cognitive Debrief Interviews that are used to review created tools.
Locations(1)
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NCT05505500