Interview Study of Adult and Child Patients and Parents of Children With Swelling Due to Nephrotic Syndrome.

This study is developing and testing surveys and questionnaires to better understand how swelling (edema) from nephrotic syndrome affects quality of life for children and adults with this kidney disease. The goal is to create reliable tools that patients and caregivers can use to report their symptoms. You may be eligible if: - You are a parent/caregiver of a child (aged 2-12) with nephrotic syndrome and current swelling (edema), OR - You are a patient aged 8 or older with a primary nephrotic syndrome diagnosis and current swelling - Your kidney function is above a minimum threshold (eGFR > 25 ml/min) - You are able to read and understand English You may NOT be eligible if: - The patient has been on dialysis for the 3 months before enrollment - You have a significant other chronic or severe health condition affecting how you feel (for patient cohort) Talk to your doctor to see if this trial is right for you.