RecruitingNCT04548817
Neurocutaneous Melanocytosis Registry
Prospective Registry of Patients With Neurocutaneous Melanocytosis (NCM) Including Cutaneous and CNS Involvement
Sponsor
Memorial Sloan Kettering Cancer Center
Enrollment
100 participants
Start Date
Sep 3, 2020
Study Type
OBSERVATIONAL
Conditions
Summary
This study will involve collecting information about the regular medical care you receive for large cutaneous melanocytic nevi (LCMN) or neurocutaneous melanocytosis (NCM).
Eligibility
Plain Language Summary
Simplified for easier understanding
This registry is collecting information about patients with Neurocutaneous Melanocytosis (NCM) — a rare condition where abnormal pigment cells grow on the skin and/or in the brain and spinal cord — to better understand the disease and support future research.
**You may be eligible if...**
- You have a large congenital melanocytic nevus (LCMN) — a large dark birthmark — which may or may not have satellite lesions or abnormal hair growth
- OR you have confirmed melanocyte overgrowth in the central nervous system (brain or spinal cord), even without a skin birthmark
- Patients of any age can be included, including children
- Deceased patients may also be included (with guardian consent, contacted at least 6 months after death)
**You may NOT be eligible if...**
- You do not have a large congenital melanocytic nevus or confirmed CNS melanocytosis
- A parent or legal guardian is not available to provide consent for minor patients
Talk to your doctor to see if this trial is right for you.
This is a simplified summary. Always discuss eligibility with your doctor before enrolling in a clinical trial.
Locations(2)
View Full Details on ClinicalTrials.gov
For the most up-to-date information, visit the official listing.
NCT04548817