RecruitingNCT04690374

Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Registry for Patients With Desmoplastic Small Round Cell Tumor


Sponsor

Memorial Sloan Kettering Cancer Center

Enrollment

250 participants

Start Date

Dec 22, 2020

Study Type

OBSERVATIONAL

Conditions

Summary

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.


Eligibility

Inclusion Criteria3

  • Participants must have a diagnosis of desmoplastic small round cell tumor
  • Participants may be of any age as long as the appropriate consent and assent may be obtained
  • Willing to provide historical and longitudinal clinical data

Exclusion Criteria1

  • Participant unwilling to provide consent or share historical and longitudinal clinical data

Locations(1)

Memorial Sloan Kettering Cancer Center (All Protocol Activities)

New York, New York, United States

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NCT04690374


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