RecruitingNCT04690374

Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Registry for Patients With Desmoplastic Small Round Cell Tumor

Sponsor

Memorial Sloan Kettering Cancer Center

Enrollment

250 participants

Start Date

Dec 22, 2020

Study Type

OBSERVATIONAL

Conditions

Desmoplastic Small Round Cell Tumor

Summary

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Eligibility

Plain Language Summary

Simplified for easier understanding

This is a patient registry study collecting health information about people diagnosed with desmoplastic small round cell tumor (DSRCT) — an extremely rare and aggressive cancer that typically affects children and young adults. The goal is to gather data from patients worldwide to better understand the disease and develop treatments. **You may be eligible if...** - You have been diagnosed with desmoplastic small round cell tumor (DSRCT) - You are of any age (children and adults are included) - You are willing to share your medical history and allow ongoing data collection **You may NOT be eligible if...** - You are unwilling to provide consent or share your health data Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

Interested in this trial?

Get notified about updates and connect with the research team.