RecruitingNCT04872179
International Registry of Patients With Alpha Thalassemia
International Prospective Registry of Patients With Alpha Thalassemia
Sponsor
University of California, San Francisco
Enrollment
500 participants
Start Date
Jan 1, 2017
Study Type
OBSERVATIONAL
Conditions
Summary
This is an international prospective registry of patients with Alpha thalassemia to understand the natural history of the disease and the outcomes of fetal therapies, with the overall goal of improving the prenatal management of patients with Alpha thalassemia.
Eligibility
Inclusion Criteria2
- diagnosis of alpha thalassemia (prenatal or postnatal) with genotype consistent with ATM or BHFS phenotype
- referred to the University of California, San Francisco Fetal Treatment Center for fetal diagnosis, management and/or evaluation for the ongoing in utero stem cell transplantation clinical trial
Exclusion Criteria1
- \- none
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Locations(1)
View Full Details on ClinicalTrials.gov
For the most up-to-date information, visit the official listing.
NCT04872179