RecruitingNCT04972604
CureDuchenne Link®: A Resource for Research
CureDuchenne Link®: A Resource to Support Research Studies in Duchenne and Becker Muscular Dystrophy (DMD/BMD)
Sponsor
CureDuchenne
Enrollment
5,000 participants
Start Date
Jul 9, 2021
Study Type
OBSERVATIONAL
Conditions
Summary
CureDuchenne link is a data hub comprised of integrated biospecimens, clinical data, and self- and/or caregiver-reported information from participants. Anyone over 4 weeks old who has been diagnosed with DMD or BMD or who is a carrier of DMD or BMD can join. Parents or legal guardians can sign up their child(ren).
Eligibility
Min Age: 4 Weeks
Inclusion Criteria5
- Any of the following are true:
- Currently has a confirmed diagnosis of DMD/BMD based on genetic testing, muscle biopsy, or clinical diagnosis.
- Currently has a confirmed diagnosis of carrier status for DMD/BMD based on genetic testing.
- Parent/guardian (for minor participants) or participant gives informed consent and/or assent as required by local regulations.
- Is age 4 weeks or older at the time of consent.
Exclusion Criteria2
- Is a foster child or ward of the state.
- Is a prisoner.
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Locations(10)
View Full Details on ClinicalTrials.gov
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NCT04972604
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