RecruitingNCT05126810

Willingness to Participate in a Trial Comparing Standard Genetic Counseling Versus Personalized Genetic Counseling

Evaluate Willingness to Participate in a Trial Comparing Standard Genetic Counseling Versus Personalized Genetic Counseling Based on LFSPRO-ShinyApp Data


Sponsor

M.D. Anderson Cancer Center

Enrollment

500 participants

Start Date

Nov 3, 2022

Study Type

OBSERVATIONAL

Conditions

Summary

This study evaluates patients willingness to participate in a trial comparing standard genetic counseling versus personalized genetic counseling. Collecting information from patients may help researchers learn why patients may or may not take part in the future study that compares standard genetic counseling to personalized genetic counseling.


Eligibility

Inclusion Criteria3

  • Individuals age 15 or older OR parent/guardian of a patient younger than 15 years (if age 15-17, the patient will provide assent and parent/guardian will provide consent), pregnant women will also be allowed to participate
  • English fluency
  • Receive genetic counseling specifically for TP53 genetic testing and who consent to undergo TP53 genetic testing OR individuals whose genetic testing indicates a TP53 germline mutation

Exclusion Criteria2

  • Individuals who are non-English speaking
  • Individuals having low suspicion for a TP53 germline mutation during pretest counseling and test negative for a TP53 mutation

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Interventions

OTHERQuestionnaire Administration

Complete questionnaire


Locations(1)

M D Anderson Cancer Center

Houston, Texas, United States

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NCT05126810


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