RecruitingNCT05239858

International Wilson's Disease Patient Registry (iWilson Registry)

Sponsor

Orphalan

Enrollment

500 participants

Start Date

Jun 29, 2022

Study Type

OBSERVATIONAL

Conditions

Wilson's Disease

Summary

Longitudinal, observational, non-interventional, standard of care Registry. Data will be collected from the routinely scheduled WD clinic visits at approximately 6-12 month intervals. At enrolment, in addition to data from the clinic visit, retrospective data will be collected from the diagnostic evaluation and any relevant past medical history and a summary of WD medication history.

Eligibility

Min Age: 12 Years

Plain Language Summary

Simplified for easier understanding

This clinical trial is studying a new treatment for people with wilson's disease. The study is currently recruiting participants at 16 locations. People eligible for this study include aged 12 Years and older.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(16)

University Hospital Leuven

Leuven, Belgium

Hospices Civils de Lyon

Bron, Auvergne-Rhône-Alpes, France

HF Adolphe de Rothschild

Paris, Île-de-France Region, France

Charite-Univeritatsmedizin Berlin Hospital

Berlin, Germany

Universitatsklinikum Dusseldorf

Düsseldorf, Germany

Hannover Medical School (MHH)

Hanover, Germany

Universitätsklinikum Leipzig

Leipzig, Germany

Institute of Psychiatry and Neurology

Warsaw, Poland

The Children's Memorial Health Institute

Warsaw, Poland

King Faisal Specialist Hospital in Riyadh

Riyāḑ, Riyadh Region, Saudi Arabia

Hospital Universitario GC Dr Negrín

Las Palmas de Gran Canaria, Canary Islands, Spain

University Hospital Clínic de Barcelona, C. de Villarroel

Barcelona, Spain

Hospital Universitario Virgen del Rocío

Seville, Spain

Hospital Universitario Y Politécnico La Fe

Valencia, Spain

Leeds Teaching Hospitals NHS Trust

Leeds, United Kingdom

Royal Free Hospital

London, United Kingdom

View Full Details on ClinicalTrials.gov

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NCT05239858

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