RecruitingNCT05697874

International Rare Brain Tumor Registry


Sponsor

Children's National Research Institute

Enrollment

5,800 participants

Start Date

Jan 1, 2023

Study Type

OBSERVATIONAL

Conditions

Summary

The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.


Eligibility

Max Age: 45 Years

Plain Language Summary

Simplified for easier understanding

This international registry collects data on patients with rare and unusual brain tumors — including CNS sarcomas, BCOR-altered tumors, astroblastomas, and other hard-to-classify brain cancers — to help researchers better understand and treat these conditions. **You may be eligible if...** - You have been diagnosed with (or are suspected to have) a rare brain tumor such as CNS sarcoma, BCOR-altered tumor, astroblastoma, or another unclassifiable brain tumor - You (or your parent/guardian) are willing to sign an informed consent - You were diagnosed at age 46 or younger **You may NOT be eligible if...** - Your primary tumor is outside the brain or spine (CNS) - You or your family are unwilling to participate or provide consent - You are older than 46 at the time of diagnosis Talk to your doctor to see if this trial is right for you.

This is a simplified summary. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(10)

Children's Hospital Los Angeles

Los Angeles, California, United States

University of California San Francisco

San Francisco, California, United States

Children's National Hospital

Washington D.C., District of Columbia, United States

Ann & Robert H. Lurie Children's Hospital of Chicago

Chicago, Illinois, United States

Akron Children's Hospital

Akron, Ohio, United States

Cincinnati Children's Hospital Medical Center

Cincinnati, Ohio, United States

Rambam Health Care Campus

Haifa, Israel

Schneider Children's Medical Center- CLALIT Health Services

Petah Tikva, Israel

Dana-Dwek Children's Hospital- Tel Aviv Medical Center

Tel Aviv, Israel

The Sheba Medical Center

Tel Litwinsky, Israel

View Full Details on ClinicalTrials.gov

For the most up-to-date information, visit the official listing.

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NCT05697874