RecruitingNCT05697874
International Rare Brain Tumor Registry
Sponsor
Children's National Research Institute
Enrollment
5,800 participants
Start Date
Jan 1, 2023
Study Type
OBSERVATIONAL
Conditions
Summary
The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.
Eligibility
Max Age: 45 Years
Plain Language Summary
Simplified for easier understanding
This international registry collects data on patients with rare and unusual brain tumors — including CNS sarcomas, BCOR-altered tumors, astroblastomas, and other hard-to-classify brain cancers — to help researchers better understand and treat these conditions.
**You may be eligible if...**
- You have been diagnosed with (or are suspected to have) a rare brain tumor such as CNS sarcoma, BCOR-altered tumor, astroblastoma, or another unclassifiable brain tumor
- You (or your parent/guardian) are willing to sign an informed consent
- You were diagnosed at age 46 or younger
**You may NOT be eligible if...**
- Your primary tumor is outside the brain or spine (CNS)
- You or your family are unwilling to participate or provide consent
- You are older than 46 at the time of diagnosis
Talk to your doctor to see if this trial is right for you.
This is a simplified summary. Always discuss eligibility with your doctor before enrolling in a clinical trial.
Interested in this trial?
Get notified about updates and connect with the research team.
Locations(10)
View Full Details on ClinicalTrials.gov
For the most up-to-date information, visit the official listing.
NCT05697874