RecruitingNCT05734404

Longitudinal Study for Central Nervous System Vasculitis


Sponsor

University of Pennsylvania

Enrollment

40 participants

Start Date

Mar 1, 2023

Study Type

OBSERVATIONAL

Conditions

Summary

Primary central nervous system vasculitis (CNSV) is a potentially fatal, single-organ vasculitis that often involves a spectrum of neurologic complications, including strokes, cognitive and speech impairment, visual loss, dementia, and encephalopathy. The purpose of this study is to establish a research cohort to investigate the disease process, treatments, and patient outcomes in CNSV.


Eligibility

Min Age: 18 Years

Inclusion Criteria5

  • i. Diagnostic criteria for CNSV
  • The presence of an acquired and otherwise unexplained neurologic deficit
  • The presence of either classic angiographic or histopathologic features of angiitis in the CNS
  • No evidence of systemic vasculitis or any condition that could cause the angiographic or pathologic features
  • ii. ≥18 years of age

Exclusion Criteria1

  • i. Unwilling to sign informed consent.

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Locations(6)

Mayo Clinic

Rochester, Minnesota, United States

Cleveland Clinic

Cleveland, Ohio, United States

University of Pennsylvania

Philadelphia, Pennsylvania, United States

Vanderbilt University

Nashville, Tennessee, United States

St. Joseph's Healthcare

Hamilton, Canada

University of Toronto/Sinai Health

Toronto, Canada

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NCT05734404


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