RecruitingNCT05871996

Palliative Care and Oncology Survey on Terminology

What do Individuals Known to Palliative Care and Oncology Services Think About the Terminology Used to Describe Them?


Sponsor

Our Lady's Hospice and Care Services

Enrollment

1,532 participants

Start Date

Oct 3, 2023

Study Type

OBSERVATIONAL

Conditions

Summary

The term '"cancer survivors" is widely used but has different definitions. One definition describes "cancer survivors" as individuals from the time of diagnosis throughout their lives, which includes people living with cancer and people free of cancer. The views of some groups included in this definition of "cancer survivors" have rarely been assessed, including those with cancer on anticancer treatment and those known to palliative care. How they view these terms could have important implications for how they receive care services. This is an international multi-centre observational study. It aims to recruit patients internationally across Ireland and the United Kingdom. Participants known to cancer and/or palliative care hospital or hospice services as inpatients, outpatients or community patients will be asked to complete a survey during a one-off visit which should last under 30 minutes. The survey asks a series of questions to determine the perceptions of patients know to cancer and palliative care services about the terminologies used to describe them.


Eligibility

Min Age: 18 Years

Inclusion Criteria9

  • Group 1: Individuals with a diagnosis of cancer known to palliative care services
  • Diagnosis of cancer
  • Under the care of palliative care services as an inpatient, outpatient or community patient
  • Age ≥18 years
  • Able to speak / read English (enough to complete questionnaire)
  • Diagnosis of cancer
  • Under the care of oncology services and currently receiving an anticancer treatment regimen of any kind
  • Age ≥18 years
  • Able to speak / read English (enough to complete questionnaire)

Exclusion Criteria5

  • Unable to provide consent
  • Unable to complete questionnaire
  • Group 2: Individuals with a diagnosis of cancer receiving anti-cancer treatment known to oncology services
  • Unable to provide consent
  • Unable to complete questionnaire

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Interventions

OTHERPalliative Care and Oncology Survey on Terminology (POST)

Each group receives a survey to complete. The only difference between the two is the inclusion criteria; the surveys are the same.


Locations(3)

St Vincent's University Hospital

Dublin, County Dublin, Ireland

Our Lady's Hospice & Care Services

Dublin, Ireland

Royal Surrey County Hospital

Guildford, Surrey, United Kingdom

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NCT05871996


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