RecruitingNCT06000527

Juvenile Recurrent Respiratory Papillomatosis: Establishment of a French National Cohort (PRR : National Cohort " REPA ")


Sponsor

Imagine Institute

Enrollment

200 participants

Start Date

Oct 1, 2022

Study Type

OBSERVATIONAL

Conditions

Summary

Recurrent respiratory papillomatosis (RRP) is a rare disease. However, it is the most common benign laryngeal tumor in children. To date, no epidemiological data are available in France. The aim of this study is to establish the epidemiology of juvenile PPR.


Eligibility

Inclusion Criteria5

  • Patients with juvenile PRR (disease onset before age 18)
  • Followed in the :
  • The MALO CRMR
  • One of the MALO network's CCMRs
  • One of the main correspondent centers

Exclusion Criteria2

  • Patients objecting to the collection of their personal data
  • Parents of minor patients objecting to the collection of their child's personal data

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Locations(1)

hôpital Necker Enfants malades

Paris, France

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NCT06000527