Experience Life, Needs and Expectations of Families of Older Polyhandiccaped Persons
Assistance Publique Hopitaux De Marseille
82 participants
Jun 24, 2024
OBSERVATIONAL
Conditions
Summary
The general objective of PolyAGE is to explore the life experience of familial caregivers of aging persons with polyhandicap (\>= 35 years). The investigators will question parents (objective 1) and siblings (objective 2) about the experiences, the social representations, the needs and the expectations, as well as the mechanisms associated with their choices about their children with polyhandicap. The objective 3 is to co-analyze parents' and siblings' experiences regarding the aging of their relatives with polyhandicap.
Eligibility
Inclusion Criteria4
- Mother or father (>=18 years) of a with severe polyhandicap aged 35 and over at the time of inclusion
- Person (>=18 years) having at least one parent in common with a person with a severe polyhandicap aged 35 and over at the time of inclusion
- Person agreeing to participate after having been informed of the study's objectives and procedures
- Parents and siblings who refuse to participate
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Locations(7)
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NCT06222112