RecruitingNCT06366815

phenotypeS in Non Ambulant Duchenne Muscular Dystrophy

Characterizing Phenothypes in Non Ambulant Duchenne Muscular Dystrophy


Sponsor

Fondazione Policlinico Universitario Agostino Gemelli IRCCS

Enrollment

250 participants

Start Date

Aug 30, 2022

Study Type

OBSERVATIONAL

Conditions

Summary

The aims of the study are to prospectively collect information on several aspects of function in non-ambulant DMD patients by using a structured battery of tests including motor, respiratory and cardiac function


Eligibility

Sex: MALEMin Age: 8 YearsMax Age: 35 Years

Inclusion Criteria1

  • Children with genetically confirmed diagnosis of Duchenne Muscular Dystrophy will be included in the study. We will include all Duchenne Muscular Dystrophy boys who have lost the ability to walk independently.

Exclusion Criteria2

  • Patients lacking genetic confirmation of Duchenne Muscular Dystrophy
  • Patients still able to walk for more than 10 meters.

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Interventions

OTHERDifferent Phenotypes of non ambulant patients with Duchenne Muscular Dystrophy

clinical and functional data collection of non ambulant patients with Duchenne muscular dystrophy


Locations(2)

IRCCS Eugenio Medea - Ass. "La Nostra Famiglia"

Bosisio Parini, Lc, Italy

Fondazione Policlinico Universitario A. Gemelli IRCCS

Roma, Italy

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NCT06366815


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