RecruitingNCT06377462

Multicenter, Interdisciplinary National VEXAS Registry With Accompanying Biomaterial Collection


Sponsor

Technische Universität Dresden

Enrollment

500 participants

Start Date

Mar 13, 2024

Study Type

OBSERVATIONAL

Conditions

Summary

The aim is rapid collection of real-life data on the epidemiology, treatment and disease course in patients with VEXAS syndrome during routine clinical practice and collect biomaterials to evaluate genotype-phenotype associations, determine optimal treatment schedule, identify diagnostic features and biomarkers


Eligibility

Min Age: 18 Years

Inclusion Criteria3

  • Patients with established or suspected (clinical and hematological criteria) VEXAS Syndrome
  • Age ≥18 years
  • Signed informed consent form

Exclusion Criteria1

  • patients who are not in a position to understand the nature and scope of participation in this register

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Locations(13)

Universitätsklinikum Aachen

Aachen, Germany

Klinikum Chemnitz gGmbH

Chemnitz, Germany

Universitätsklinikum Carl Gustav Carus

Dresden, Germany

Universitätsklinikum Düsseldorf

Düsseldorf, Germany

Evang. Kliniken Essen-Mitte

Essen, Germany

Universitätsklinikum Hamburg-Eppendorf

Hamburg, Germany

Universitätsklinikum Leipzig AöR

Leipzig, Germany

Universitätsmedizin Mannheim

Mannheim, Germany

Klinikum rechts der Isar TUM

München, Germany

Klinikum Osnabrück GmbH

Osnabrück, Germany

Helios Kliniken Schwerin GmbH

Schwerin, Germany

Robert Bosch Gesellschaft für Medizinische Forschung mb

Stuttgart, Germany

Krankenhaus der Barmherzigen Brüder

Trier, Germany

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NCT06377462


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