Pilot-testing a Perinatal Palliative Care Intervention Program

Inclusion Criteria9

• Parents:
• who receive a severe foetal diagnosis for their unborn child and decide to continue the pregnancy after 20 weeks of gestation , or
• who receive a severe foetal diagnosis for their unborn child after 20 weeks gestation and decide to terminate the pregnancy (with or without feticide) resulting in the stillbirth of their child
• Parents who receive a severe neonatal diagnosis for their live-born infant in the first week after birth
• Parents are either Dutch speaking, or are willing to participate with support from a (phone or real life) interpreter, in collaboration with the "Agentschap Integratie \& Inburgering"
• Parents are older than 18
• Parents are not suffering from an officially diagnosed psychiatric disorder prior to receiving the severe diagnosis of their child
• Parents are deemed (emotionally) approachable for the current study by the treating physician
• For each family included in the pilot study, the physicians and nurses/midwives who will be/are most closely involved in the care of the infant and the parents will also be asked to participate. If healthcare providers refuse to provide informed consent to participate in the study, their data will be deemed as missing for that case (parental outcomes are considered as the primary outcome measures).