RecruitingPhase 3NCT06597006

Study to Evaluate Safety, Tolerability and Efficacy of Inclisiran in Children With Homozygous Familial Hypercholesterolemia

Two Part (Double-blind Inclisiran Versus Placebo [Year 1] Followed by Open-label Inclisiran [Year 2]) Randomized Multicenter Study to Evaluate Safety, Tolerability, and Efficacy of Inclisiran in Children (2 to Less Than 12 Years) With Homozygous Familial Hypercholesterolemia and Elevated LDL-cholesterol


Sponsor

Novartis Pharmaceuticals

Enrollment

9 participants

Start Date

Feb 28, 2025

Study Type

INTERVENTIONAL

Conditions

Summary

This is a pivotal phase III study designed to evaluate safety, tolerability, and efficacy of inclisiran in children (aged 2 to \<12 years) with homozygous familial hypercholesterolemia (HoFH) and elevated low density lipoprotein cholesterol (LDLC).


Eligibility

Min Age: 2 YearsMax Age: 11 Years

Plain Language Summary

Simplified for easier understanding

This study is testing inclisiran, an injectable cholesterol-lowering medicine, in young children (ages 2 to under 12) who have homozygous familial hypercholesterolemia (HoFH) — a severe inherited condition causing dangerously high LDL cholesterol from birth. **You may be eligible if...** - Your child is between 2 and under 12 years old - Your child has HoFH confirmed by genetic testing - Your child's LDL cholesterol is above 130 mg/dL - Your child is already on the highest tolerated statin dose **You may NOT be eligible if...** - Your child has a specific type of HoFH (null/negative mutations in both LDLR genes) - Your child has used PCSK9 antibody medications in the past 90 days - Your child has had a poor response to PCSK9 antibody treatment before - Your child has active liver disease - Your child is pregnant or nursing - Your child weighs less than 11 kg (under 6 years) or 16 kg (ages 6-12) Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

DRUGInclisiran

Inclisiran (inclisiran sodium 300 mg subcutaneous (s.c.) for participants with body weight ≥23 kg, inclisiran sodium 180 mg s.c. for participants with body weight \<23 kg to ≥16 kg, or inclisiran sodium 100 mg s.c. for participants with body weight \<16 kg. The dose level is based on the participant's body weight on Day 1 (for Part 1) and Day 360 (for Part 2), respectively.

DRUGPlacebo

Sterile normal saline (0.9% sodium chloride in water for subcutaneous injection)


Locations(18)

UC San Francisco Medical Center

San Francisco, California, United States

UC San Francisco Medical Center

San Francisco, California, United States

Childrens National Hospital

Washington D.C., District of Columbia, United States

Washington Univ School Of Medicine

St Louis, Missouri, United States

Novartis Investigative Site

Vienna, Austria

Novartis Investigative Site

Beijing, Beijing Municipality, China

Novartis Investigative Site

Frankfurt am Main, Hesse, Germany

Novartis Investigative Site

Ioannina, Greece

Novartis Investigative Site

Thessaloniki, Greece

Novartis Investigative Site

Kota Bharu, Kelantan, Malaysia

Novartis Investigative Site

Amsterdam, North Holland, Netherlands

Novartis Investigative Site

Bloemfontein, Free State, South Africa

Novartis Investigative Site

Taichung, Taiwan

Novartis Investigative Site

Taipei, Taiwan

Novartis Investigative Site

Adana, Saricam, Turkey (Türkiye)

Novartis Investigative Site

Ankara, Yenimahalle, Turkey (Türkiye)

Novartis Investigative Site

Izmir, Turkey (Türkiye)

Novartis Investigative Site

Southampton, United Kingdom

View Full Details on ClinicalTrials.gov

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NCT06597006


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