RecruitingNCT06642870
Rare AutoImmune SElf-management Programme Development
Rare Autoimmune Self-management Programme Development
Sponsor
University of the West of England
Enrollment
360 participants
Start Date
Oct 1, 2024
Study Type
OBSERVATIONAL
Conditions
Summary
The rare autoimmune rheumatic diseases (RAIRDs) are life-long multi-system diseases that are life or organ threatening. RAIRDs can impair quality of life similar to chronic diseases such as heart failure. The aim of the study is to explore content and structure of a support programme for people with RAIRDs in focus groups and survey meetings.
Eligibility
Min Age: 18 Years
Inclusion Criteria2
- Diagnosis of a rare rheumatic condition made by hospital doctor or secondary care: including lupus, systemic vasculitis, myositis, Sjogren syndrome (participant self-report)
- Ability to give informed consent (with translation support if needed)
Exclusion Criteria1
- \-
Interventions
OTHERNon-interventional study
The study will consist of focus groups and a large scale patient survey
Locations(1)
View Full Details on ClinicalTrials.gov
For the most up-to-date information, visit the official listing.
NCT06642870
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