RecruitingNCT06642870

Rare AutoImmune SElf-management Programme Development

Rare Autoimmune Self-management Programme Development

Sponsor

University of the West of England

Enrollment

360 participants

Start Date

Oct 1, 2024

Study Type

OBSERVATIONAL

Conditions

Sjogren Syndrome Systemic Lupus Erthematosus Systemic Sclerosis (SSc)Inflammatory Myositis ANCA Associated Vasculitis (AAV)Systemic Vasculitis

Summary

The rare autoimmune rheumatic diseases (RAIRDs) are life-long multi-system diseases that are life or organ threatening. RAIRDs can impair quality of life similar to chronic diseases such as heart failure. The aim of the study is to explore content and structure of a support programme for people with RAIRDs in focus groups and survey meetings.

Eligibility

Min Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This study is developing a self-management program to help people with rare autoimmune rheumatic diseases (such as lupus, vasculitis, myositis, or Sjogren's syndrome) better manage their condition in daily life. **You may be eligible if...** - You have been diagnosed with a rare rheumatic condition by a hospital doctor or specialist, including lupus, systemic vasculitis, myositis, or Sjogren's syndrome - You are able to give informed consent (translation support is available if needed) **You may NOT be eligible if...** - There are no additional exclusion criteria listed for this study Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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