RecruitingNot ApplicableNCT06823622

Digital Delivery of Person-centered Transitional Care

Evaluation of the Digital Delivery of Person-centered Transitional Care to Empower Adolescents With Chronic Childhood-onset Diseases: The Digi-STEPSTONES Study

Sponsor

Göteborg University

Enrollment

100 participants

Start Date

Oct 1, 2024

Study Type

INTERVENTIONAL

Conditions

Asthma in Children Transplantation

Summary

Advances in medical care have extended the life expectancy of individuals with congenital and pediatric-onset diseases, leading to an increased need for effective transition programs as these individuals move from pediatric to adult healthcare. The STEPSTONES project in Sweden is designed to evaluate the effectiveness of a person-centered transition program to support teenagers with chronic conditions during this transition. The project's innovative digital adaptation, Digi-STEPSTONES, seeks to address challenges related to accessibility and continuity of care by delivering the program remotely. This study will assess the non-inferiority of the digital program compared to traditional, in-person care, focusing on outcomes such as patient empowerment, transition readiness, and quality of life. Additionally, the project will explore the implementation and scalability of the digital transition model across various chronic conditions. Preliminary studies have highlighted the importance of structured, person-centered care in improving empowerment and other outcomes in adolescents with chronic illnesses. The Digi-STEPSTONES project aims to provide crucial evidence for the digital delivery of transition programs, potentially enhancing the accessibility and effectiveness of care for young people with chronic conditions in Sweden.

Eligibility

Min Age: 15 YearsMax Age: 20 Years

Plain Language Summary

Simplified for easier understanding

This study is testing a digital program designed to improve the transition of care when patients move from hospital to home. The goal is to reduce the chance of being readmitted to the hospital by keeping patients better connected to their care team. **You may be eligible if...** - You are 18 or older - You are being discharged from the hospital after a medical admission - You have access to a smartphone or tablet - You are willing to use a digital health app for follow-up care **You may NOT be eligible if...** - You are being transferred to another healthcare facility (not going home) - You are unable to use digital devices due to cognitive or physical limitations - You do not speak the language of the app or study materials - You are in hospice or palliative care only Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

BEHAVIORALStepstones transition program

The STEPSTONES transition program is an 8-component intervention designed to support adolescents with chronic conditions transitioning to adult care. It includes: a transition coordinator (TC), education about the condition, phone support, guidance on transitioning to adult care, parental guidance, peer meetings, a personalized transition plan, and the actual transfer to adult care. The intervention is implemented in five steps, starting with outpatient visits and culminating in the transfer to adult care. Delivered via the "Mitt vårdmöte" digital platform, the program includes the HEADDDSS adolescent health interview and is conducted by trained specialized nurses.