Prospective Evaluation of the Results of Multidisciplinary Follow-up After a Transitional Consultation for Esophageal Atresia
Evaluation Prospective Des résultats du Suivi Pluridisciplinaire Mis en Place au décours d'Une Consultation de Transition Pour l'atrésie de l'œsophage
Assistance Publique - Hôpitaux de Paris
50 participants
Dec 19, 2024
OBSERVATIONAL
Conditions
Summary
A transition consultation for adult patients with esophageal atresia, involving medical and paramedical stakeholders, was set up at Hôpital Saint-Louis in 2020. The aim of this initiative is to: 1. initiate adult medical, psychological and social follow-up; 2. empower these adults in their future care; 3. establish a personalized follow-up schedule. This project is the first to focus on post-traumatic stress disorder (PTSD) in young adults with esophageal atresia. A 3-year analysis of the somatic and psychosocial variables analyzed will confirm the validity of this initiative, and define its optimal contours for improving these patients' quality of life as adults.
Eligibility
Inclusion Criteria5
- Patients with esophageal atresia
- Aged 18 to 30
- Followed at Hôpital Saint Louis
- Informed and not opposed to the study
- Patients affiliated to a social security scheme
Exclusion Criteria3
- Inability to answer questionnaires
- Patients under guardianship
- Patients under AME (Aide Médicale d'Etat in France)
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Interventions
Evaluation of PTSD prevalence, anxiety-depressive state, quality of life, look for a correlation between their clinical history and PTSD. Analysis of the nutritional, gastrointestinal and respiratory status.
Locations(1)
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NCT06860919